Alison Orr
Established Member
I hope I’m not duplicating a thread - I’ve searched but can’t find anything on this subject.
“On April 9, 2019, ME advocates Eileen Holderman and Gabby Klein sent an open letter to the Secretary of the U.S. Department of Health and Human Services (HHS), Alex M. Azar II.
“The letter urges Secretary Azar to implement the International Consensus Criteria (ICC), disseminate the International Consensus Primer (IC Primer), use the name Myalgic Encephalomyelitis and to stop the campaign to implement, disseminate and code systemic exertion intolerance disease (SEID).”
https://www.meadvocacy.org/open_letter_to_secretary_azar_and_calls_to_action
Supporting 3 tweet thread from Eileen Holderman:
“On April 9, 2019, ME advocates Eileen Holderman and Gabby Klein sent an open letter to the Secretary of the U.S. Department of Health and Human Services (HHS), Alex M. Azar II.
“The letter urges Secretary Azar to implement the International Consensus Criteria (ICC), disseminate the International Consensus Primer (IC Primer), use the name Myalgic Encephalomyelitis and to stop the campaign to implement, disseminate and code systemic exertion intolerance disease (SEID).”
https://www.meadvocacy.org/open_letter_to_secretary_azar_and_calls_to_action
Supporting 3 tweet thread from Eileen Holderman: