Our 8 year old has had an uptick in symptoms

Here is a link to one source on the high B12.

https://academic.oup.com/qjmed/article/106/6/505/1538806

 

Yes, that certainly can happen. There are more tests that can be done for markers of how well B12 is being used - MMA, I think? It's important to find the source of the problem so it can be treated properly, and not just supplement (if that would even help) to cover it up.

 

@BeautifulDay,

I forgot to report back that I mentioned the elevated B12 status to my neurologist. She didn't comment on possible links to MitoD but she did take it seriously and wanted Methylmalonic Acid (MMA) and Homocysteine results for a clearer picture.

Ryan

 

I don't have studies. But the NHS suggests fasting overnight (for 12 hours) before iron testing :

https://www.nhs.uk/chq/Pages/1018.aspx?CategoryID=69

The link I gave you earlier : http://www.americanhs.org/faq.htm : mentions fasting and giving up iron supplements for a week before the tests. (My underline in the quote)

I fast for every single blood test I ever have, and always get them done first thing in the morning on the basis that some of them insist on it e.g. cholesterol. If I have a (fasting, first thing in the morning) cholesterol test and iron testing done on the same day at the same time, then 6 months later have just iron testing done after eating in the middle of the afternoon, how can I compare the two sets of results in a meaningful way? So, I don't have any links to back up what I do, but it just seems logical to me. I realise this is no help to you though.

You may have read it in the link I gave in post #5.

I feel better supplementing B12, despite having no reason for this to be the case according to doctors, and despite having high levels of B12. They are convinced the effect is placebo. I carry on regardless.

You may find this site of use, although you have probably already found it :

UK : https://labtestsonline.org.uk/
USA : https://labtestsonline.org/

There are lots of reasons for metallic taste in the mouth, among them high zinc and/or high copper. It would be worth investigating. There may be some useful avenue(s) to explore.

http://www.badmouths.org/

https://symptomchecker.webmd.com/mu...ste-in-mouth&symptomids=98|459&locations=66|7



I've exhausted all my sources of info that may be relevant to your daughter's results, so I don't think I can usefully suggest anything else. But if I think of anything, I'll post again.