PACE trial manuals no longer accessible

[Robert 1973]

The PACE trial manuals no longer seem to be available from the QMUL website without a log in:
https://www.qmul.ac.uk/wolfson/research-projects-a-z/current-projects/pace-trial/

Does anyone have copies of the manuals they can share here?

 

[Andy]

I uploaded four that were shared here recently to MEpedia, http://me-pedia.org/wiki/PACE_trial#Study_design

 

[Woolie]

Here is the apt participant manual ( I don't seem to have a copy of the therapist's manual for APT):

 

[Esther12]

Oops - I thought they'd all been uploaded to MEpedia. After the one woolie posted, looks like these are the only two missing now.

 

[Sbag]

I think i downloaded them all a few weeks ago. Am away at the mo though so won't be able to check until next week.

 

[BruceInOz]

Here's a complete set so anyone getting to here doesn't need to go further. These were downloaded in April 2011.

 

[Keela Too]

Thank you @BruceInOz -very useful. Seems Prof Sharpe wasn't aware they were now behind a login. He says he's going to ask QMUL.

 

[Barry]

Patient rated outcomes were used because that is how the illness is defined

This sounds like a circular justification to me, because surely they used a definition most likely to show more favourable results with subjective outcomes. Or am I missing something?

 

[Keela Too]

Apparently now back online. I haven't checked yet.

 

[Barry]

Apparently now back online. I haven't checked yet.

Yep, one example https://www.qmul.ac.uk/wolfson/media/wolfson/current-projects/5.get-therapist-manual.pdf.

In the spirit of fair play he deserves a thank you for that.

Will have to tweak MEPedia again I guess @Andy.

 

[Keela Too]

Yep, one example https://www.qmul.ac.uk/wolfson/media/wolfson/current-projects/5.get-therapist-manual.pdf.

In the spirit of fair play he deserves a thank you for that.

Will have to tweak MEPedia again I guess @Andy.

Yes. I sent him a thank you...

Actually two. One when he said he'd look into it, and one when he reported back that they were online again.

 

[Barry]

Yes. I sent him a thank you...

Actually two. One when he said he'd look into it, and one when he reported back that they were online again.

Excellent.

 

[Esther12]

Looks like these are still unavailable:

To see the information on the trial given to potential participants, please click here [PDF 41KB] (PDF, 42 KB)

Patient Clinic Leaflet [PDF 29KB] (PDF, 30 KB)

 

[Barry]

Looks like these are still unavailable:

True.

 

[Keela Too]

Oh! So only some of the documents are still available. Meh.
Too late to think now, I'll look again tomorrow.

Did they ONLY put up the therapist manuals for each of the four trial arms? But not the other documents? It would seem daft not to have all available. Gah.

 

[Esther12]

Did they ONLY put up the therapist manuals for each of the four trial arms? But not the other documents? It would seem daft not to have all available. Gah.

It looks like the therapist and participant guides are up, but those couple of additional things are not.