PacificStandard: How Disabled People Care for Each Other When Doctors Can't

[ahimsa]

[Note to moderators: I think this belongs in general news - please move if this is the wrong forum]

New article by David M. Perry (twitter handle @Lollardfish) talking about the film Unrest.

https://psmag.com/social-justice/how-disabled-people-care-for-each-other-when-doctors-cant

How Disabled People Care for Each Other When Doctors Can't
In her new film Unrest, Jennifer Brea offers a groundbreaking look at the power of community where medicine falls short.

When Jennifer Brea was 28 years old, she got sick and spiked a fever of 104.7 degrees. The fever went down, but soon she found herself overwhelmed by exhaustion and unable to function. It took a year and a half to get a diagnosis, but eventually she discovered three things. First, she had myalgic encephalomyelitis (also known as chronic fatigue syndrome, abbreviated CFS/ME). Second, through taking videos of her experiences and using video-chat to connect with others who share her condition around the world, she found a community and a mission. Third, most doctors routinely mis-identify CFS/ME, no one really understands the mechanisms of the condition or how to treat it, and no one is allocating the resources to find out.

 

[Andy]

[Note to moderators: I think this belongs in general news - please move if this is the wrong forum]

My opinion is that it's fine here