Pacing and pace up

Hello all,
I am curious - what terms are being used to label 'symptom-contingent graded exercise therapy (and symptom-contingent graded activity therapy)' in French speaking regions that hides the GET and GAT?
For what I know, we use pacing in french, but I never heard of pace up...

 

I have heard of building your base as the same as pacing up.

 

In my experience, they keep changing the names. Some even call gradually increasing activity ‘pacing’.

So the name doesn’t really matter, it’s the content that makes it pacing up. It’s unfortunate for us because it means that we have to dig for the meaning every time..

 

My impression was that 'pacing up' was not a term used by people doing the pacing up but by their critics. The people doing it will call it pacing or activity management.

 

“pacing” as defined by pretty much every doctor I’ve seen in french-speaking Switzerland who’d heard of the term meant “pacing up” to them.

“Oui, pacing ça veut dire lentement revenir à un taux d’activité normal, marcher de plus en plus loin, reprendre le travail petit a petit. Evidamment çe n’est pas utiliser une chaise roulante et rester allongé, comme vous le faites”.

(in English for those curious:
Yes, pacing means slowly returning to a normal level of activity, walking farther and farther, gradually going back to work. Obviously, it doesn’t mean using a wheelchair and staying lying down, like you do)

This is a re transcription of something I was told by a specialist I was referred to by the local long COVID clinic, who is a “long COVID researcher”.

 

@Trish I believe you’re missing a link to the thread?

 

Many people have setbacks, when their symptoms get worse for a period of time. We advise people to ‘pace down’ during these times, and work to a lower baseline. People can then gradually ‘pace up’ again as they recover from the setback.

I am not sure that is 'pacing up'. It sounds more like sensible pacing in the context of a changing baseline. The suggestion that people can pace up 'as they recover' - i.e. when they are better, which sounds the sensible policy to me.

I don't think this would be consistent with Gladwell saying - 'we use the pacing up approach'.

 

This.

The key is the order:

1. Did you improve before you increased your activity?
2. Or did you increase your activity to create an improvement?

1 is pacing. 2 is pacing up and very dangerous.

 

Right. But I doubt they say what they do is 'Pacing Up'. We say that. They call it pacing.

 

Thanks, yes, i saw it, but i did not have the chance to read it yet. I was asking because i am doing the french translation of the fact sheet 1 and i want to make sure i am using the right expression!

 

Very well put!

 

Do people actually have a baseline that is consistently the same every day?

 

Early on with Long Covid we had a discussion on Twitter with a few francophone professionals and we couldn't really come up with a good term for pacing. Some French descriptions simply adopt pacing directly.

Pacing up is as contradictory as going down upstairs, and would probably only translate as accélérer/accelerate, defeating the entire purpose. Which is the whole purpose! The ideologues have simply decided over the years to subsume our terminology, make it so ambiguous that it can mean either, thus making it easy to push GET while the patient thinks they are doing the opposite. It's very dishonest, but that is what they do.

 

I opt to put a definition : l’augmentation progressive planifiée des activités pour étendre les limites énergétiques. I hope it represent well what pacing up mean.