Pacing and pace up

I don't know what French speakers use for these but I suspect the situation is much the same as in English, any such terms are used almost at random to mean whatever the speaker wants it to mean. So writing a definition of proper ME-pacing is probably the best way around this, together with a mention of there being types of pacing that are inappropriate for pwME (pacing is a general term used in rehab for all sorts of conditions, and even there it's not used consistently, sometimes it means pacing to conserve energy and sometimes it means gradually increasing activity to regain some function)

To me "l’augmentation progressive planifiée des activités pour étendre les limites énergétiques" reads more as a description of GET because "planifiée" sounds more time- than symptom-contingent

For pacing up or symptom-contingent GET/GAT "l’augmentation progressive des activités pour étendre les limites énergétiques" would fit better as here increases are typically allowed to be made flexibly, the problem is that the goal of the exercise is to ultimately increase of the energy envelope which is not part of ME-pacing

 

I thought mostly the same. Until I had a period where I was so severe I lost 99.9% of communication ability or do anything but drink liquid food and daydream.

Then I really noticed how I had a baseline. Because since my daily schedule was exactly the same every single day I could see how I had this daily capacity that kept me stable, but if one day I had one more exertion — ie. an ambulance passed by, this baseline would completely change for atleast a week and what I could do in the day to trigger PEM would be less.

When it’s to the point that every moment of your day is repetitively coreographed. And you do basically nothing. It gets much easier to pinpoint the concept of a baseline and how it’s a pretty useful simplification for understanding the PEM producing aspect of the illness, atleast in my case.

(But also how fragile it is to fluctuate constantly and not really exist as a useful concept unless you really do extremely little in a very repeptitive routine)