Pacing - what do you do/how would you describe it?

What prevents me from pacing are my desires and needs, my urge to LIVE!

What helps me most with pacing is remembering how much I hate the payback of not doing so, how I then feel sick, how it puts my life on hold.

What change would enable me to pace more effectively? - Learning evermore from point 2... I never seem to learn… (and of course, having others help me with my needs if possible)

 

Getting it into my head *permanently* that pacing works and going over my energy boundary isn't ever going to change.

I'm still in PEM 5 days later after getting up and down on my chair (10 times) to take down my sheers and blinds for cleaning and putting them back up again hoping I'll skip PEM this time around just because I want to look at nice clean wall hangings.

 

Reaching up and lifting heavy things above head is worst thing you can do if you have orthostatic intolerance ie standing especially standing still gives you PEM. Hope it resolves soon.

 

What stops me pacing well
Unexpected energy demand later in day, plus needing to do more because carers so shorthanded, nearing retirement and many going off sick trying to fit in all the calls to make up
Also need to listen to talking book to rest as mind too busy to rest

What helps me pace
Awareness of payback

what would help
Having carers at regular times not in such a rush fitting in extra calls but no new younger ones coming forward.

 

A good mindset for good energy management is to do things for fun and personal satisfaction. That avoids falling into the trap of becoming ambitious and setting goals to do and achieve more.

Too much fun can also lead to overexertion.

If the focus is on "how am I feeling while doing this, does it still feel good" it helps pay attention to current energy levels and whether they are getting low.