Bizarre symptom #53.
For a few days in 2008, I had the most intense pain I have ever experienced. I have smashed my elbow on a pothole, been driven into when on my bike by a car going at 30+mph, broken both bones in my forearm, been smashed up on rugby pitches in several countries, but nothing compared to this.
It came on when I ate and would subside between meals. It was so painful I was running round the room hitting myself. From googling I think it was 'trigeminal neuralgia'. It started one morning, lasted a few days (as I say, only when I ate) and then stopped. I felt flu-ey for a couple of days after and that was it.
I have had periods when it has simmered away but only to the level of discomfort, not to that of the intense pain.
A couple of days ago when I was eating I got a very painful tongue as if I had bitten down hard on the right side of it, though I hadn't and there was no apparent damage. The tongue has ached since but again it's when I eat that it all gets very painful. I think it's the hypoglossal nerve. It has been at the level of running round the room and curling up in a ball and rocking back and forth.
It does subside slightly after the initial mouthfuls so I can finish the meal, though as it's the tongue that is painful, it's not comfortable. I am getting pains in some of the nerve-endings in my teeth as well, though again that's tolerable.
It is definitely linked to the illness as I'm experiencing other symptoms, which I do sometimes, such as sharp intense headaches.
Apart from making things unpleasant, it doesn't really affect my physical functioning.
(ETA: though it is draining so I am tired and my cognitive functioning is even less.)
Usually when I go through a phase where symptoms rage like this I see some improvement afterwards, so I hope...
For a few days in 2008, I had the most intense pain I have ever experienced. I have smashed my elbow on a pothole, been driven into when on my bike by a car going at 30+mph, broken both bones in my forearm, been smashed up on rugby pitches in several countries, but nothing compared to this.
It came on when I ate and would subside between meals. It was so painful I was running round the room hitting myself. From googling I think it was 'trigeminal neuralgia'. It started one morning, lasted a few days (as I say, only when I ate) and then stopped. I felt flu-ey for a couple of days after and that was it.
I have had periods when it has simmered away but only to the level of discomfort, not to that of the intense pain.
A couple of days ago when I was eating I got a very painful tongue as if I had bitten down hard on the right side of it, though I hadn't and there was no apparent damage. The tongue has ached since but again it's when I eat that it all gets very painful. I think it's the hypoglossal nerve. It has been at the level of running round the room and curling up in a ball and rocking back and forth.
It does subside slightly after the initial mouthfuls so I can finish the meal, though as it's the tongue that is painful, it's not comfortable. I am getting pains in some of the nerve-endings in my teeth as well, though again that's tolerable.
It is definitely linked to the illness as I'm experiencing other symptoms, which I do sometimes, such as sharp intense headaches.
Apart from making things unpleasant, it doesn't really affect my physical functioning.
(ETA: though it is draining so I am tired and my cognitive functioning is even less.)
Usually when I go through a phase where symptoms rage like this I see some improvement afterwards, so I hope...
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