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Petition: [Finland] ME/CFS IS NOT A FUNCTIONAL DISORDER – WE CALL FOR APPROPRIATE TREATMENT [all can sign]

Discussion in 'Petitions' started by Andy, Oct 22, 2018.

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  1. Andy

    Andy Committee Member

    Messages:
    22,305
    Location:
    Hampshire, UK
    https://my.meaction.net/petitions/m...al-disorder-we-call-for-appropriate-treatment
     
    Andy, Oct 22, 2018
    #1
    Samuel, Inara, JaimeS and 23 others like this.
  2. alex3619

    alex3619 Senior Member (Voting Rights)

    Messages:
    2,200
    Right now we have no good evidence based treatments that actually treat ME, we only have treatments to help alleviate symptoms ... however just making those available would help immensely. Governments are likely to push back because there is no effective treatment, all they have is dubious claims from functional neuropsych doctors. They prefer bad or dubious treatments to treatments of limited effect. Sigh.

    Signed.
     
    alex3619, Oct 22, 2018
    #2
    Samuel, Inara, JaimeS and 6 others like this.
  3. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,603
    Anyone (international) is welcome to sign the petition, right? Maybe make that clearer in the thread title?
     
    mango, Oct 23, 2018
    #3
    JaimeS, rvallee, Invisible Woman and 5 others like this.
  4. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
    13,963
    Location:
    London, UK
    That is a remarkably well worded quote from Finland. Nothing unreasonable, but pulling no punches.
     
    Jonathan Edwards, Oct 23, 2018
    #4
    rvallee, Invisible Woman, Skycloud and 5 others like this.
  5. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

    Messages:
    692
    Done.
     
    ScottTriGuy, Oct 23, 2018
    #5
    inox, Invisible Woman, andypants and 1 other person like this.
  6. John Mac

    John Mac Senior Member (Voting Rights)

    Messages:
    958
    Done
     
    John Mac, Oct 23, 2018
    #6
    inox, Invisible Woman, Andy and 1 other person like this.
  7. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,515
    Signed and shared.
     
    Amw66, Oct 23, 2018
    #7
    inox, Invisible Woman, Andy and 1 other person like this.
  8. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    10,280
    Signed
     
    Invisible Woman, Oct 23, 2018
    #8
    inox, andypants and Andy like this.
  9. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
    1,248
    Location:
    Stanford, CA
    signed & shared
     
    JaimeS, Oct 23, 2018
    #9
    andypants, Andy, Trish and 2 others like this.
  10. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,386
    Signed.
     
    Barry, Oct 23, 2018
    #10
    Invisible Woman and Andy like this.

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