Petition: [Finland] ME/CFS IS NOT A FUNCTIONAL DISORDER – WE CALL FOR APPROPRIATE TREATMENT [all can sign]

Andy

Andy

Retired committee member
Dear ministers Annika Saarikko and Pirkko Mattila, we call on you to initiate the planning of the treatment of ME/CFS on the basis of up-to-date scientific knowledge. The model for treating functional disorders is not appropriate for this disease.


WHAT WE CALL FOR:

Patients with ME/CFS are entitled to evidence-based treatment, and instead of organizing psychosocial treatment, we call on the Finnish social and health care to

• acknowledge ME/CFS as a physical illness and treat both patients and their families on an equal basis with patients suffering from other serious organic diseases (the Finnish equality act)

• provide its employees and medical students up-to-date, correct information (not the theory of ME/CFS as a functional disorder)

• use diagnostic criteria, that is strict enough to distinguish ME/CFS from other conditions (e.g. the Canadian Concensus Criteria[1])

• organize symptomatic treatment on the basis of up-to-date scientific definition of ME/CFS as a somatic illness

• apply biomedical, evidence-based treatments developed for ME/CFS, as soon as they are available

• guarantee ME/CFS patients the support and the specific equipments that they need to cope according to the Finnish disability service act.
Click to expand...
https://my.meaction.net/petitions/m...al-disorder-we-call-for-appropriate-treatment
 
Right now we have no good evidence based treatments that actually treat ME, we only have treatments to help alleviate symptoms ... however just making those available would help immensely. Governments are likely to push back because there is no effective treatment, all they have is dubious claims from functional neuropsych doctors. They prefer bad or dubious treatments to treatments of limited effect. Sigh.

Signed.
 
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