Petition: Review treatment of people with ME in Scotland

Please help Scottish ME patients by signing this petition to the Scottish Parliament, calling for a review of the treatment of ME patients in Scotland, with a view to invest in biomedical research, education and care.

Read the full details of what we're asking for here, anyone can sign: http://www.parliament.scot/GettingInvolved/Petitions/PE01690

We've created a video to help spread the word about the petition and educate folks on why they should care about ME patients:

https://www.youtube.com/watch?v=wG5g4M7KWv8

It would be wonderful if you could sign the petition and share video!

Also! Anyone know how to embed youtube videos into facebook/twitter posts? We've been trying for the past day..

 

Good info, will share with family and on other parents' forums

 

Thanks, never made a video before so it took a ridiculously long time! Luckily have got some very talented friends.

And thanks for the welcome, I found the forum through your weekly round ups which have been so useful!

@Amw66 that would be really helpful thank you

 

Very good work @Emsho, and Welcome!

 

Good to see you here @Emsho. Great work on the video & campaign

 

Now up to 3,232 signatures.

 

With offline and online signatures combined we have over 5,000

Although the petition is still open for signatures, and has not been lodged yet, we have been contacted about the next stage (submitting evidence). I’d like to chat to someone running S4ME before posting anything else- @Andy is that you? I’m not sure who to dm.

 

Yes, I PM'd Emma in regard to the post directly above.

From the MillionsMissing Scotland Facebook page,

Code:

https://www.facebook.com/MillionsMissingScotland/posts/2058090454512038

 

good video shared to fb

 

There's an hour and a half to go, and we only need 50 signatures to reach 7,000 (we've collected 1000+ offline) if you've not signed it yet please sign and share!

 

We made it! 7,036

 

Great news

 

Next Action (not sure if should be new thread or not!) Scottish people, please contact your MSP,especially if your MSP is on the petitions committee that we're meeting with next week. Constituency MSPs on the committee are from FALKIRK EAST, ETTRICK, ROXBURGH and BERWICKSHIRE and STRATHKELVIN and BEARSDEN The two Regional MSPs are from GLASGOW and SOUTH SCOTLAND meaning anyone from Glasgow and South Scotland can contact them. Short parliamentary briefing and more details available here: https://www.meaction.net/2018/06/01/scottish-action-urge-your-msp-to-support-petition-for-me/

 

Probably best, so see https://www.s4me.info/threads/scottish-action-–-urge-your-msp-to-support-petition-for-me.4398/

 

Hey @Emsho , I am very impressed with the video. For a first one, that is amazing. The tempo, the variety, the tone!

 

Code:

https://www.facebook.com/meactionscot/posts/2200117796975969

 

Code:

https://www.facebook.com/meactionscot/posts/2201296633524752

 

Code:

https://www.facebook.com/meactionscot/videos/182804772658683/

 

She also made particular mention of the evidence submitted by Professor Jonathan Edwards of UCL regarding the ‘building in’ of bias to studies such as the PACE trial, which claim to provide evidence for the efficacy of CBT/GET.

Ah, now I can sew a Scottish Parliament badge on my scout's tee shirt.