Phone consult with Dr Teitelbaum ?

Dechi

Dechi

Senior Member (Voting Rights)
I am desperate to find a doctor who will prescribe off label, typical ME drugs. I am currently on no treatment plan at all, never had one and I want to change that in hopes of getting better.

I saw Dr Teitelbaum does a 3 hour consult by phone with a treatment plan and since I don’t know much about him, I was wondering if this is a good option ?

It is quite a bit of money for me at the moment as I used all my savings to move. I would not be able to repeat this consult, or maybe just one more time, many months later. The goal would be to get a treatment plan that my current GP would maintain (hopefully she will agree to that but that not even sure). If she refuses, then I have a problem...

What do you think ? Is this a good idea ?

For Canadian patients, will my pharmacy accept a prescription by a US doctor ?
 
I am in the same boat, but trying to get an appointment with Dr Hyde (had one but was cancelled).

I had a quick look at Dr Teitelbaum's website and my advice is don't waste your money. He seems to think he can treat or even cure ME/CFS and Fibromyalgia,
Exercise (as Able)
Decreased activity causes deconditioning. Pushing too hard, though, causes "postexertional fatigue," where you feel like you were hit by a truck the following day. So the proper balance is to do a level of walking that leaves you feeling "good" tired afterwards and better the next day. After 10 weeks on S.H.I.N.E., your energy levels will usually increase markedly, allowing you to condition instead of simply crashing after exercise.
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http://www.vitality101.com/cfs-and-fibromyalgia-overview


He backs up his claims by stating he has been on TV many times.
https://www.energyanalysisprogram.com/

And his treatments look iffy.
http://www.vitality101.com/qa/what-are-best-supplements-for-brain-fog
http://www.vitality101.com/Effective-Treatment-Of-Severe-Chronic-Fatigue-States

I know what its like to be desperate and i wish i had some answers for you but i don't think Dr Teitelbaum is the way to go :(
 
Dechi said:
I am desperate to find a doctor who will prescribe off label, typical ME drugs. I am currently on no treatment plan at all, never had one and I want to change that in hopes of getting better.

I saw Dr Teitelbaum does a 3 hour consult by phone with a treatment plan and since I don’t know much about him, I was wondering if this is a good option ?

It is quite a bit of money for me at the moment as I used all my savings to move. I would not be able to repeat this consult, or maybe just one more time, many months later. The goal would be to get a treatment plan that my current GP would maintain (hopefully she will agree to that but that not even sure). If she refuses, then I have a problem...

What do you think ? Is this a good idea ?
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I personally don't favour Dr Teitelbaum as last time I looked he was promoting d-ribose. A post by me about him and d-ribose can be found on this page on Phoenix Rising: https://forums.phoenixrising.me/ind...-and-fibromyalgia-patients.18498/#post-281346

I've read some positive messages here about d-ribose, but have noticed that they are (mostly) from men. Men have quite different biochemical changes in ME from women, so maybe that's why?
 
MeSci said:
I've read some positive messages here about d-ribose, but have noticed that they are (mostly) from men. Men have quite different biochemical changes in ME from women, so maybe that's why?
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Thats interesting, i found it useful but for a very different reason (at least this is my theory)
When i was less severe it worked great because i was burning myself out hard but mostly recovering each time once the PEM passed, it helped the recovery.
Now that i am more severe burning myself out badly makes the disease worse so i don't do it unless absolutely necessary so it no longer works for me.
 
Alvin said:
I am in the same boat, but trying to get an appointment with Dr Hyde (had one but was cancelled).

I had a quick look at Dr Teitelbaum's website and my advice is don't waste your money. He seems to think he can treat or even cure ME/CFS and Fibromyalgia,

http://www.vitality101.com/cfs-and-fibromyalgia-overview


He backs up his claims by stating he has been on TV many times.
https://www.energyanalysisprogram.com/

And his treatments look iffy.
http://www.vitality101.com/qa/what-are-best-supplements-for-brain-fog
http://www.vitality101.com/Effective-Treatment-Of-Severe-Chronic-Fatigue-States

I know what its like to be desperate and i wish i had some answers for you but i don't think Dr Teitelbaum is the way to go :(
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Thanks for that. Not very inspiring.

Dr Hyde has closed his office since summer to take care of his sick wife. We don’t know when he will reopen. Some people say in October but I suppose it entirely depends on his wife’s health.

Also, Dr Hyde doesn’t treat patients. He does diagnosis and then sends you to whatever specialist can help, and for testing and ruling out other diseases. He will also help patients get disability benefits.
 
The 'boost' I had was small. Then I had to go to Service Canada to renew my ID and OHIP (provincial health card) which had lapsed and sort out some banking at the bank. That plus a move at the same time and I no longer respond.

But, and this may be of no help to anyone I have found that whatever helps in some small way is best used with care. More is not better. And it seems that using something and then taking a break for a while can work better too. But nothing I have tried has done more than give me a slightly better base line and it doesn't stop being less able over time.
 
Dechi said:
I am desperate to find a doctor who will prescribe off label, typical ME drugs. I am currently on no treatment plan at all, never had one and I want to change that in hopes of getting better.

I saw Dr Teitelbaum does a 3 hour consult by phone with a treatment plan and since I don’t know much about him, I was wondering if this is a good option ?
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Save your money, Dechi. If there were typical ME drugs that could help with symptom relief, our GPs would know about them by now. The sad truth is that at the moment, there is no treatment available. We all want to get better.
 
TigerLilea said:
Save your money, Dechi. If there were typical ME drugs that could help with symptom relief, our GPs would know about them by now. The sad truth is that at the moment, there is no treatment available. We all want to get better.
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LDN has been said to help some of us. Nobody will prescribe it to me. They’re all afraid of what the doctor’s association will do to them if they find out.
 
@Dechi is there a integrative functional doctor in your area? Years ago I was seeing one and he prescribed it for me as a trial to see if it would help. From what I've been reading on forums is that it helps pts with pain. I do not have pain so didn't feel it made a difference for me, but it did make me feel agitated so I stopped after one month.
 
Mij said:
@Dechi is there a integrative functional doctor in your area? Years ago I was seeing one and he prescribed it for me as a trial to see if it would help. From what I've been reading on forums is that it helps pts with pain. I do not have pain so didn't feel it made a difference for me, but it did make me feel agitated so I stopped after one month.
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I’ve tried every kind of doctor around here and they’re all useless and either want to cure my traumas or get rid of me in some way. So no more.

I will probably try it from a foreign pharmacy that doesn’t need a prescription. Thanks for the suggestion though, it would be nice if we had those kind of doctors who understand ME around here.
 
I actually got two remissions with his vitamin powder ( but distroyed my stomach) is called from fatigue to fantastic revalitation formula. Some plp said that some plp hd heart stopped or death. I don’t know the truth of that but I love their powder!!! Takes about a month to work and I was back to old self about 3 months but it is not cure (since I relapsed after 3 months on Gym).
There is a book that explain the natural stuff to try. My doctor actually first the natural route with me and I think if plp are not that far gone might work ok ( I was very mild at the beginning) but I needed prescription after 3rd relapse and still fighting the fight!!!!
 
TigerLilea said:
Wouldn't Canada Customs seize it at the border though if it requires a prescription here in Canada?
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I have never done this, but, I do know a few Americans friends who had no problems buying drugs from online pharmacies. They are very discreet when they ship.
 
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