Hi all I was reviewing some ME history and PACE trial stuff last year when it suddenly hit me -That Peter White was the Peter White I saw at Bart’s in 2007. I had mild ME at that time and was still working. He diagnosed me with Fibromyalgia. He asked a really leading question - which is worse, pain or fatigue? I said pain as I’d recently had to stop ibuprofen after a stomach bleed and was in a lot of pain taking paracetamol. I had the non-specific cold/sore throat, bad sleep and PEM. Reading back, there’s also such a lot about my family history, even at the time I thought it odd - he even recorded how my mother gave birth to me. That’s Psychiatrists for you, I suppose! He also moderated some of my family history so that no same-sex relationships could be identified (not at my request!). Anyway, I now wonder whether he chose to categorise some of us as Fibromyalgia- knowing the treatment is gentle exercise, which he of course thinks is the way to prevent malingering? have any of you out there had the pleasure of meeting himself or being assessed by him?
With the Oxford criteria for CFS that Peter White likes, fatigue must be the main symptom --- Oxford 1991 criteria https://en.wikipedia.org/wiki/Clinical_descriptions_of_chronic_fatigue_syndrome#Oxford_1991_criteria --- I don't think that's right. In his CFS/ME service, they even turn downed referrals if pain was the primary problem: Alternative Diagnoses to Chronic Fatigue Syndrome in Referrals to a Specialist Service: Service Evaluation Survey https://journals.sagepub.com/doi/10.1258/shorts.2011.011127
No just made my ME worse! Actually it was in an old part of Bart’s where you had to walk up a huge staircase, probably an early ATOS prototype (you walked up the stairs, you can’t have ME) It’s freaking me out now, at the time I’d put a lot of faith in him and now I’ve realised who he is
