Professor Peter White

[MrMagoo]

Hi all

I was reviewing some ME history and PACE trial stuff last year when it suddenly hit me -That Peter White was the Peter White I saw at Bart’s in 2007.
I had mild ME at that time and was still working. He diagnosed me with Fibromyalgia. He asked a really leading question - which is worse, pain or fatigue? I said pain as I’d recently had to stop ibuprofen after a stomach bleed and was in a lot of pain taking paracetamol.
I had the non-specific cold/sore throat, bad sleep and PEM.

Reading back, there’s also such a lot about my family history, even at the time I thought it odd - he even recorded how my mother gave birth to me. That’s Psychiatrists for you, I suppose! He also moderated some of my family history so that no same-sex relationships could be identified (not at my request!).


Anyway, I now wonder whether he chose to categorise some of us as Fibromyalgia- knowing the treatment is gentle exercise, which he of course thinks is the way to prevent malingering?

have any of you out there had the pleasure of meeting himself or being assessed by him?

 

[Dolphin]

With the Oxford criteria for CFS that Peter White likes, fatigue must be the main symptom

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Oxford 1991 criteria

The Oxford criteria were published in 1991[11] and include both CFS of unknown etiology and a subtype of CFS called post-infectious fatigue syndrome (PIFS), which "either follows an infection or is associated with a current infection." The Oxford criteria defines CFS as follows:

Fatigue must be the main symptom
There must be a definite onset
The fatigue must be debilitating
The fatigue must have lasted for 6 months or longer, and be present at least 50% of the time
Other symptoms are possible, such as muscle pain, mood problems, or sleep disturbance
Conditions known to cause severe fatigue and some mental conditions exclude a diagnosis.
Post-infectious fatigue syndrome also requires evidence of a prior infection.[11]

https://en.wikipedia.org/wiki/Clinical_descriptions_of_chronic_fatigue_syndrome#Oxford_1991_criteria
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I don't think that's right.


In his CFS/ME service, they even turn downed referrals if pain was the primary problem:

There were 67 (35%) reasons in referrals that were declined due to likely alternative medical diagnoses. The majority of these were due to chronic pain being the primary problem (32, 16%).

Alternative Diagnoses to Chronic Fatigue Syndrome in Referrals to a Specialist Service: Service Evaluation Survey
https://journals.sagepub.com/doi/10.1258/shorts.2011.011127

 

[John Mac]

That Peter White was the Peter White I saw at Bart’s in 2007

Did you go on to suffer PTSD?

 

[MrMagoo]

Did you go on to suffer PTSD?

No just made my ME worse!
Actually it was in an old part of Bart’s where you had to walk up a huge staircase, probably an early ATOS prototype (you walked up the stairs, you can’t have ME)

It’s freaking me out now, at the time I’d put a lot of faith in him and now I’ve realised who he is

 

[Sid]

No just made my ME worse!

What treatment did he prescribe?

 

[MrMagoo]

Phenergan! And no caffeine.

 

[MrMagoo]

Oh -graded exercise. For my Fibromyalgia.