" In 2017, Jen Brea did the impossible. She catapulted ME/CFS onto the public stage, and into the international spotlight, all in one fell swoop with her film, Unrest. Brea’s moving documentary has been received with universal acclaim. It has been reviewed by the New York Times, the Wall Street Journal, LA Times, The Guardian, The Telegraph, the Boston Globe and a host of regional and industry publications. Vogue called Unrest a “must-see” and “a stunning glimpse into life with myalgic encephalomyelitis.” The Los Angeles Times called the film a "sensitive and arresting rally cry for increased awareness about this disease, and an existential exploration of the meaning of life while battling a crippling chronic illness…remarkably intimate, deeply edifying and a stirring call to action.” Unrest has been shown across the United States and as far as Abu Dhabi, Pakistan, and India. In the UK, there was even a showing at the House of Commons. Special screenings have been held for medical professionals, for congressional representatives, for community organizers, and in churches, colleges, libraries, and hospitals. Panel discussions led by notable experts, physicians, researchers and advocates have raised awareness about the disease to an unprecedented degree. The film was aired on NPR in January 2018, and is now available on Netflix, where it can reach millions of viewers." rest of article here: https://www.prohealth.com/library/p...2017-advocate-of-the-year-jennifer-brea-43998
I have mixed feelings about a small private company that sells unproven products to ME sufferers using announcements like this to further its own reach into the world of ME sufferers, and get free advertising as a result when we share it. Or am I being too cynical.
I understand the mixed feelings, but still, congratulations to Jen! Also, I like the author's review of the film a lot, it's analytical, sensitive, and even philosophical, in just a few lines. The list of important takeaways for medical professionals and politicians is well summarized, the subtle comment the author adds to Omar's loving response - something all PwME would like to hear, but "Sadly, many of us never do", very sensitive… And the last paragraph on simple pleasures followed by grief, and then the "renewed appreciation of that small taste of what it is like to be fully alive", a lesson I am trying to grow on constantly...
Linda Tannenbaum Named 2017 Advocate of the Year There's an Angel Among Us - Linda Tannenbaum Is Offering Genuine Hope to ME/CFS Patients (Shared from ProHealth) ProHealth is proud to name Linda Tannenbaum, founder of Open Medicine Foundation, as ProHealth's 2017 ME/CFS Advocate of the Year. ProHealth founder, Rich Carson said, “Linda is a bottomless pit of compassion and a tower of integrity. She's a woman on a mission, with a razor-like focus on finding a cause and a cure.” The article shares OMF's background, Linda’s very personal mission, and ends with some hopeful words: “For perhaps the first time ever, ME/CFS patients have a legitimate reason for genuine hope––hope for effective treatments and even hope for a cure.” Read the full article here.
I feel its better to celebrate Jen Brea’s accomplishments, rather than to focus on the specific company that awarded her the title of “2017 ME/CFS Patient Advocate of the Year”. (Although I feel it should be 2018) I have never ordered from ProHealth, and regarding who they nominate each year, has zero influence on my choice to purchase or not purchase their products. The internet is full of “healthy” products with bogus claims. Let the buyer beware (caveat emptor). That being said, I enjoyed the comments here (to show a balance on the subject matter).
Linda is Advocate of the Year, Jen is Patient Advocate of the Year. I'm guessing they are two separate awards?
Yes. Apparently 2 advocates are better than 1 https://www.prohealth.com/library/t...baum-offering-genuine-hope-cfs-patients-45162