Proprioception Dexterity Balance

I don't know how common this is, but, when my "dizziness" was at its worst, my vision would sometimes appear to be tilted maybe 5~10 degrees clockwise. It was most noticeable when walking down a hallway. It may have had something to do with my eyes not converging correctly, but I'm not sure.

[This is actually a hallway built to be tilted. In my case the floor would have also appeared tilted.]



https://twitter.com/CurbedSF/status/1037747683207856129

 

Dear effing god, if i had to walk through that hallway i would be banging off the walls and probably have a seizure

 

Too crashed to read thread, sorry, just title. I fall over when I close my eyes, and generally lose my balance, every time my B12 drops below about 350. Can't remember the units.

My neuro (I see regularly for chronic migraines) always has me close my eyes. If I fall over, he sends me for a blood test - is always low when I'm falling!

I just can't keep my B12 up despite daily sublinguals.

 

Which sublingual do you take and what dose?

 

I take Jarrows methylcobalamin 1000mcg daily. It can get me up to 650 whatever units on B12 blood tests, which is great. But then it can slide down again.

Maybe I go through times when I'm not even absorbing it sublingually? Wouldn't be suprised. Everything digestive stops with migraines.

 

You can take a much higher dose, 5000mcg tablets are available around here. Also 650 is still considered low, there is research suggesting 800(?) is the lowest acceptable level (i don't have a link handy). Methylcobalamin is a good one but it might be worth trying another brand? There is also adenosylcobalamin, not sure it will make any difference though some seem to swear by it.
Also blood tests will pickup the levels in the blood but not bound to protein(?), to get a proper level you have to stop for a few weeks to a month then get tested. I am curious why your level drops so quickly, the body can store several years of B12 but your not for some reason. Might be worth investigating, though i don't know who you should go to to look at this.

 

Thanks @Alvin. Aint never achieved 800. I know the Japanese say 500 is low, for sure.

Yes, exactly - we should all have several years of B12 stored - yet my meat eating, healthy diet son also recently turned up a low B12, (plus low folate), blood test. Maybe it's genetic?

I need to get him tested for pernicious anemia. I'm not taking it from food either clearly. Should also get tested.

I'll try adenosylcobalamin - maybe 2000 of that and 2000 of the other will do the trick

Guess I should get injections, but I'd have to arrange it privately, as the GP thinks pills are enough. I have no brain for it all.

 

I did Shot-O-B12 sublingual spray for a while, it was very very efficient for me. I went up to 1650 on it (up from 370).

Unfortunately they have discontinued it on iHerb so I now use Jarrow methyl B12 + folate lozenges.

I am probably absorbing B12 well, though.

ETA: random missing words.

 

Well if the blood level goes up with the supplements then the injection will still make it higher still so you are absorbing the supplement. But why are you not retaining it. You might be right that its genetic, but high blood levels that the body can't store and maybe not properly utilize is something to investigate.

 

I switched to injectable and have found it very helpful.

 

Seems like an effect like the "tilted hallway" I posted above might be caused by a problem with the 4th cranial nerve, aka the "Trochlear Nerve."

Unlike the other eleven, multi-functional cranial nerves, the only thing the 4th cranial nerve controls is the muscle that rotates the eye around its pupil's axis a few degrees. It does this to compensate for the lateral tilt of the head.

It's also the longest cranial nerve, as it is the only one that reaches around to the back of the brain-stem. Its length may make it more susceptible to injury. It can also suffer "central damage" at its "nucleus" where it connects to the brain stem.

 

Interesting. As a child I had a very bad ear infection and spent two weeks pressing a pillow to my ear with my shoulder. For two weeks after, I kept my head tipped to the side because my sight had reoriented itself and I believed I was holding my head straight. Makes sense that it could (mal)adjust for other reasons as well.