Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

Well enough in advance of announcing the postponement on 17 August, for press releases not to have already gone out.

 

Just checked the NICE site yet again, guess it is time to give up on expecting anything to be announced today.

 

I would wait a few days. NICE isn't the fastest and with big decisions, they'll need time to get things right.

If it comes before next week, that'll be a lovely treat, but they'll probably have to contact stakeholders first with additional (probably embargoed) information and then release the guideline after that.

That means at least a few days will have to occur between meeting and publication.

 

Breathing for ME is a thing, one of the doctors of renown in the US recommends it, I can't remember which one. I got a breathing app and practiced breathing lying on the floor for a few weeks, but it made no difference and I got bored so I stopped.

I was asked today whether I'd tried yoga.

 

Maybe it will be a midnight-hour release.

Edit: Or maybe not ...

 

If I'm wrong, then that'll be a lovely surprise.

 

I had been hoping today there would have been an announcement of the timescale for publication, rather than the actual publication itself.

I agree they will want to contact steak holders and sort press releases etc before publication. So though Friday might have been a possibility a longer delay was always equally possible, especially as we don’t know how they plan to pursue the clarifications coming out of the round table event.

 

[QUOTE="chrisb, post: 385035, member: 34m]Doesn't that quote in the source cited refer to Wessely?[/QUOTE]
Yes.. but
[QUOTE="Peter Trewhitt, post: 385430, member: 470"

I agree they will want to contact steak holders and sort press releases etc before publication.[/QUOTE]
Couldn't resist Peter.
Even looks like Dr P!

 

That would mean that media releases would have to have gone out late yesterday afternoon or early today.

 

Okay are we staying up until midnight to refresh @NICEcomms twitter together?

...And every night from now on?

 

They need to allow themselves time to get to the airport after publication before anyone notices, so 3am sounds about right.

 

I was kind of half-joking, but I do hope they do a statement soon clarifying the timeline.

 

Probably not . My staying up won't make any difference to the timing, so not going to worry myself.

 

It is said that breathing a certain way can stimulate the vagus nerve, in a similar way to micro current devices

 

all sorts of things are said.

 

I would watch this movie

 

I agree. I very much doubt we will see the finalised guideline and associated documents and resource materials this side of the weekend.

 

Yea Northern Ireland has no specialist service to the best of my knowledge. @Keela Too

However, I'm hoping that the changes for the better in the UK will e.g. be picked up elsewhere (European Union is one example) @Michiel Tack

 

No. You are right. No specialist service yet. Long story.