i don't really understand this article but it seems potentially relevant [given e.g. the seeming heterogeneity of m.e., diagnostic questions, and the many things that pop up here that don't seem quite the same as known diseases but also are not part of m.e. definitions]. https://angioedemanews.com/2022/03/18/radar-rare-diseases-registry-program/ eta: radar should be in the title.