Preprint Reclaiming health: a qualitative, explorative study of long covid recovery journeys involving mind-body approaches, 2026, Deurman et al

rvallee

Senior Member (Voting Rights)
Reclaiming health: a qualitative, explorative study of long covid recovery journeys involving mind-body approaches

Objective
This study explored the recovery experiences of individuals who report having (largely) recovered from long covid and who attributed their improvement to mind-body approaches.

Design, setting and participants
We conducted an explorative qualitative study using purposive recruitment through social media and snowball sampling. Eighteen adult women (aged 37-62 years), who self-identified as having had long covid and having substantially recovered through mind-body approaches participated in semi-structured interviews. Data were analysed using Saunders’ practical thematic analysis.

Results
Despite variation in personal narratives, a common trajectory emerged: participants moved away from a biomedical explanatory model towards one centred on nervous system dysregulation. This shift, sometimes following initial scepticism, was often described as a turning point, sparking hope and motivation to engage in self-directed strategies. Recovery was not linear but an iterative process, involving cycles of practice, reflection (especially when progress stagnated) and adaptation of mind-body techniques. Over time, participants gained insights into contributing factors and, in many cases, made intentional life changes to support ongoing recovery. These patterns echo findings from previous research on mind-body approaches in chronic pain and chronic fatigue, and align with neuroscientific perspectives on symptom generation.

Most participants navigated this process without formal clinical support, relying instead on online communities and actively avoiding sources of (biomedical) information that conflicted with their new understanding.

Conclusions
While causal inferences cannot be drawn from qualitative data, this study highlights potential mechanisms that may underpin recovery for people with long covid using mind-body approaches. Further research is needed to develop structured interventions, and to evaluate their efficacy and safety.

Future research should also explore how prevailing narratives within healthcare and society influence treatment engagement and recovery trajectories.
 
This study was part of a citizen science and public-private partnership program that was funded by funded by ZonMW Health Holland
The IRB of the Leiden University Medical Center (LUMC) waived ethical approval for this work, LUMC ID 22-3030.
Hesitated to post it because it's basically rage bait, but this is the direction medicine is going overall with this stuff, so it's still meaningful.
 
The lead author is a PhD student:
Together with a group of recovered patients we are studying the feasability of and experience with a primary care based treatment program for patients with medically unexplained symptoms and chronic pain. The program is partially group based and partially individual, and based on the treatment principles of Lumley and Schubiner (the mind-body approach and Emotion Awareness and Expression Therapy - EAET).

She has a background from health insurance, among other things (auto translated):
Christine is a Public Health Physician and has worked for the past few years as a medical advisor at the health insurers Eno and DSW, focusing on primary care and prevention. Prior to that, she worked for over ten years in various countries in sub-Saharan Africa, on projects ranging from emergency aid to policy support for quality improvement projects.
 
I think it’s quite telling when academia decides to summarise as gospel the stories that are used for advertising by corporate wellness influencers without any distance.

The worst part is that these people probably would see this thread and just call us “bitter” because we’re “jealous” or some pseudo-psychological patient blaming.

The lead author is a PhD student:


She has a background from health insurance, among other things (auto translated):

I guess we can be pretty certain who these narratives benefit. And it ain’t us.
 
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