Dolphin
Senior Member (Voting Rights)
Paper is here:
https://ojs.scholarsportal.info/ontariotechu/index.php/id/article/download/266/256
Including Disability, Issue 4
Reimagining Protest: Artivism in the Myalgic Encephalomyelitis (ME) Community
Casey G. Doherty, Independent Scholar
Abstract
Activism is a critical element of the disability rights movement.
However, traditional forms of activism often exclude activists with severe energy-limiting disabilities, such as myalgic encephalomyelitis (ME).
People with ME have been ignored, maligned, and disbelieved for decades while being excluded from traditional forms of disability justice activism.
ME activists have had to adopt creative activism techniques to raise awareness and share their stories while adhering to their energy limits.
This paper, based on an exploratory design research thesis, seeks to explain how artivism—the intersection of art and activism—provides a unique way for people with severe ME to participate in protests and movements from their homes or beds.
I utilize crip theory to analyze how artivism by the ME community represents an empowering counter to the stigma, ignorance, and inaccessible forms of activism they have faced.
Keywords:
Artivism, art, activism, energy-limiting disabilities, myalgic encephalomyelitis (ME), pandemic, crip theory, exploratory design research
https://ojs.scholarsportal.info/ontariotechu/index.php/id/article/download/266/256
Including Disability, Issue 4
Reimagining Protest: Artivism in the Myalgic Encephalomyelitis (ME) Community
Casey G. Doherty, Independent Scholar
Abstract
Activism is a critical element of the disability rights movement.
However, traditional forms of activism often exclude activists with severe energy-limiting disabilities, such as myalgic encephalomyelitis (ME).
People with ME have been ignored, maligned, and disbelieved for decades while being excluded from traditional forms of disability justice activism.
ME activists have had to adopt creative activism techniques to raise awareness and share their stories while adhering to their energy limits.
This paper, based on an exploratory design research thesis, seeks to explain how artivism—the intersection of art and activism—provides a unique way for people with severe ME to participate in protests and movements from their homes or beds.
I utilize crip theory to analyze how artivism by the ME community represents an empowering counter to the stigma, ignorance, and inaccessible forms of activism they have faced.
Keywords:
Artivism, art, activism, energy-limiting disabilities, myalgic encephalomyelitis (ME), pandemic, crip theory, exploratory design research