Report on #SpeakUp project, to help improve health and social care provision for people with ME/CFS and Fibromyalgia in Sheffield

I haven’t read it yet but looking at the infographics, this isn’t really specific to Sheffield i.e. could be of interest to people elsewhere including in other countries.

From: Sheffield ME & Fibromyalgia Group

This summer Sheffield ME & Fibromyalgia Group worked with Healthwatch Sheffield on the #SpeakUp project, to help improve health and social care provision for people with ME/CFS and Fibromyalgia in Sheffield - and now we're delighted to share the results with you!

On our blog you can find a summary of our findings and recommendations, along with links to a two-page infographic, and the full report.

There's also news about the #SpeakUp Working Group, our ongoing project collaborating with local decision makers from the NHS, Sheffield City Council and other organisations who support our members.

Thank you so much to everyone who has shared their experiences and been involved in this campaign. We'll continue to work to make sure your voices are heard.

https://www.sheffieldmegroup.co.uk/post/speakup-the-results

 

We have finally been given the contact details of who will be leading implementation of the NICE Guideline in our County.

Sheffield’s excellent report/Infographs arrived in my inbox this week, so the members of our little working group are busy reading it all to ‘borrow’ as much as we can (amending to suit a large rural county, instead of a busy city) to share with our ICB (Integrated Care Board).

Thank you Sheffield!

 

Hey @NelliePledge - always okay to tag me

Sheffield ME and Fibromyalgia Group will be asking Sheffield Healthwatch to share with other Healthwatch groups and the national team. Sounds like a great idea to approach your local healthwatch and ICB with the results. I'm sure the Sheffield team would be interested to hear any outcomes from this - do let them know on info@sheffieldmegroup.co.uk