Open Research study on activity patterns and autonomic dysfunction, Stony Brook Medicine

Discussion in 'Recruitment into current ME/CFS research studies' started by Wyva, Jul 26, 2021.

  1. Wyva

    Wyva Senior Member (Voting Rights)

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    I saw this in a SolveME Facebook post:

    Study Alert: Our friends at Stony Brook Medicine are looking for volunteers to participate in a research study on activity patterns and autonomic dysfunction, specifically males who have #MECFS. The 15-day home-based study will involve doing two 6-min walks at home, wearing an activity + heart monitor, and filling our web diary symptom questionnaires.
    Participants will be paid up to $100. To learn more, call 631-638-0056 or email cfsresearchlab@gmail.com

     
    Last edited: Aug 9, 2021
  2. Mij

    Mij Senior Member (Voting Rights)

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    I wonder why they want men to participate?
     
    Michelle, Louie41, alktipping and 4 others like this.
  3. ahimsa

    ahimsa Senior Member (Voting Rights)

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    The link to the Facebook post was not working when I looked.

    I did a search and found this on clinicaltrials.gov - I think it's the same study?

    https://clinicaltrials.gov/ct2/show/NCT02948556
    Study uses Fukuda criteria.

    I also found this "companion study"

    https://clinicaltrials.gov/ct2/show/NCT03331419

    I am NOT great at reading comprehension when it comes to medical research and I may have made a mistake - but I thought I'd pass on these links, just in case.
     
    Hutan, Wyva, Michelle and 1 other person like this.
  4. Wyva

    Wyva Senior Member (Voting Rights)

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    The post was shared again (after the original one disappeared) but this time with a different email address, so I updated my post!
     
    ahimsa, Hutan and Peter Trewhitt like this.

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