Open Research study on activity patterns and autonomic dysfunction, Stony Brook Medicine

Wyva

Wyva

Senior Member (Voting Rights)
I saw this in a SolveME Facebook post:

Study Alert: Our friends at Stony Brook Medicine are looking for volunteers to participate in a research study on activity patterns and autonomic dysfunction, specifically males who have #MECFS. The 15-day home-based study will involve doing two 6-min walks at home, wearing an activity + heart monitor, and filling our web diary symptom questionnaires.
Participants will be paid up to $100. To learn more, call 631-638-0056 or email cfsresearchlab@gmail.com

 
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The link to the Facebook post was not working when I looked.

I did a search and found this on clinicaltrials.gov - I think it's the same study?

https://clinicaltrials.gov/ct2/show/NCT02948556
ME/CFS: Activity Patterns and Autonomic Dysfunction
Sponsor: Stony Brook University
The purpose of this study is to identify daily activity patterns, negative life events and autonomic abnormalities that may be related to non-improvement in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). For both naturalistic studies and behavioral intervention trials, roughly 50% of patients report worsening or unchanged illness. The proposed four year study would be the first to look at the relation between illness non-improvement, patient activities at home and autonomic function. Our long-range goal is to identify physiological signals and activity patterns that predict non-improvement and relapse and develop a self-management program that prescribes improvement-linked behaviors and discourages non-improvement activities.
Click to expand...

Study uses Fukuda criteria.

I also found this "companion study"

https://clinicaltrials.gov/ct2/show/NCT03331419

I am NOT great at reading comprehension when it comes to medical research and I may have made a mistake - but I thought I'd pass on these links, just in case.
 
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