Researchers looking specifically at PEM?

[Andy]

Is there anybody else apart from the Workwell team, Alain Moreau, and Lenny Jason who have attempted, or who are attempting, to look specifically at PEM?

I appreciate those mentioned are using widely different approaches, and that there could be arguments as to whether they are actually looking at PEM; I'm just trying to find out if there is anybody else out there.

 

[Felis Catus]

Rob Wüst

 

[BrightCandle]

Todd Davenport seems focussed on PEM.

 

[Nightsong]

Not sure about ongoing efforts but recent works attempting to study PEM in some way have included -

* Grimson, Hanson et al scRNA-seq work (link); also Hanson's proteomics work (link).
* Wormgoor & Rodenberg surveys (link).
* Tate et al epigenetic work (link).
* Baraniuk's mass spec work (link).
* The NIH/Walitt team also published on PEM but suspect that isn't what you want.

 

[V.R.T.]

Is there anybody else apart from the Workwell team, Alain Moreau, and Lenny Jason who have attempted, or who are attempting, to look specifically at PEM?

I appreciate those mentioned are using widely different approaches, and that there could be arguments as to whether they are actually looking at PEM; I'm just trying to find out if there is anybody else out there.

I think @MelbME is doing a good day/bad day study?

And @jnmaciuch has mentioned wanting to do a study where blood draws are done on patients currently in PEM.

Apologies if I've got either of these wrong.

 

[Andy]

Thanks all for the suggestion so far, appreciate your efforts.

 

[Trish]

Definitely not the NIH Wallitt team. Their so called PEM research was dreadful.

 

[EndME]

Definitely not the NIH Wallitt team. Their so called PEM research was dreadful.

At least the PEM study did not look very different to what the other researchers have produced. CPETs and questionnaires. Of course that study is also part of a larger work that did not grasp ME/CFS or PEM well.