Restless legs syndrome

Dopamine agonists, which treat RLS may also treat MECFS


https://forums.phoenixrising.me/threads/how-i-solved-my-neuroinflammation.81625/

 

I get this for a few weeks in the summer, usually when it's very warm at night. It stops me sleeping. I'll try a spoonful of marmalade next time, if I remember.

 

I get Restless Legs Syndrome from MSG & Metformin.

 

https://jcsm.aasm.org/doi/10.5664/j...BxXJJnxW7-sypgKdApOEJEPyOrdM0on5LoAJoqFeEnIY&

 

I don’t get RLS but chronically have something similar to this in my lower legs and feet, more of a feeling of not getting enough blood flow and oxygen down there and the resulting throbbing aches and pains. I also feel the need to stretch muscles and joints down there because it helps with the pain.

 

Time to try that spoonful of marmalade ...

 

Surely sticky restless legs would not be an improvement?

 

Exactly @Mij RLS is listed as a symptom of iron deficiency - low ferritin

 

Yup. Been working on my ferritin level, which was low. RLS was quite bothersome, especially later in the day. With more iron intake my RLS has lessened.

I can't recall if mainstream medicine views the cause of RLS a mystery or not. Of course ferritin is not a go-to test.

 

@DokaGirl

Secondary causes of restless legs syndrome and exacerbating factors should be recognized and treated
This includes managing renal impairment,2 treating serum ferritin below 50 μg/L,3 eliminating antidopaminergic drugs, addressing sleep hygiene, and reducing caffeine and alcohol intake. About two-thirds of patients resort to alternative treatments. 2 Regular physical activity and cognitive behavioural therapy may improve mood, anxiety and sleep, but require high-quality randomized controlled trials to confirm their efficacy.2

https://www.cmaj.ca/content/189/6/E245

 

I.believe my GPs response when I raised RLS was to comment lots of things might cause me to think I had RLS.

No tests, discussion, or debate as to why I'd brought it up, just lots of things might make me think I had it.

No explanation as to what any of these things might be that caused me to say I had such and such symptoms and these appeared to match with RLS.

No denial of proposal, no agreement, no testing, no questions, no suggestions as to anything to try.

I would gave been better off mentioning it to a sandwich.

At least a use can.be found for sandwiches after any discussion has occurred.

Anyone would think that my esteemed GP of several years, after extensive medical training and decades of clinical experience, didn't think RLS is real, that it only exists in the heads of patients.

 

@Wonko

A serious topic. Frustrating to have this, and zilch medical help. But your sandwich comment made me chuckle!

There are no sandwich icons here, but maybe cake will do?

How many times have people with health concerns had experiences similar to what you described?

 

You should go to Finland. We tried this three years ago (last splendid trip of the before times). It was completely fine, although well complemented with juniper gin. Would be a bit more reticent about cockroaches though.