Royal Society of Medicine and Fibromyalgia Action UK Webinar: Fibromyalgia in the 21st century: Redefining care

[Tom Kindlon]

ME Association

Royal Society of Medicine and Fibromyalgia Action UK - FMAUK Webinar: Fibromyalgia in the 21st century: Redefining care

On the 10th October 2022, The Royal Society of Medicine held a webinar in association with Fibromyalgia Action UK titled “Fibromyalgia in the 21st century: Redefining care”.

The webinar consisted of patients talking about their lived experience of fibromyalgia (FM) and clinicians who provided updates on scientific knowledge and best clinical guidelines.

https://meassociation.org.uk/2022/1...omyalgia-in-the-21st-century-redefining-care/

 

[Tom Kindlon]

Lots of recommendations of exercise in this. Looks like a diagnosis of fibromyalgia could still cause people who have ME/CFS problems.

I didn't find the responses to the following MEA question convincing:
"Many people with Fibromyalgia also have ME/CFS which may/may not have been diagnosed at the point of delivery. Graded Exercise Therapy is no longer recommended in the NICE Guideline on ME/CFS. Is there a need to look for Post-Exertional Malaise (also seen in Long Covid) before recommending exercise (GET) to people with Fibromyalgia?"