Severe M.E Day - 8th of August 2021

Sly Saint · Aug 1, 2021

UNDEREXPOSED within four walls of severe m.e photography exhibit trailer

UNDEREXPOSED within four walls of severe m.e photography exhibit launches August 8, 2021 in honour of Severe ME Awareness day. The aim of this exhibit is to spread awareness, raise funding for biomedical research and to expose the devastation of this disease. This exhibit will be hosted by www.seemeexpo.com a website showcasing artists with Myalgic Encephalomyelitis. This website will be officially launching on the 8th of August as well.
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https://www.youtube.com/watch?v=dT53W0GWQIg
Code:
https://www.youtube.com/watch?v=dT53W0GWQIg

Sly Saint · Aug 7, 2021

25% ME group

A day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis.
Severe ME Understanding & Remembrance Day : This day aims to bring public attention to the illness for the sake of all those presently suffering from Severe Myalgic Encephalomyelitis and to remember all those who have died from ME.

A day to honour the strength of spirit of all those who have endured and continue to endure decades of suffering and profound physical dysfunction and yet receive little, or no recognition or help, but rather continue to experience gross misrepresentation and misinterpretation of their illness and profound disability.
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This year to mark Severe ME Day (8th August) we decided to feature two articles by daughters about their mothers living with severe ME and the impact on their lives. Two very different stories, one by a journalist and the other by a 9 year old who wished to share her story in the hope of helping others.
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https://25megroup.org/severe-me-day-2021

Sly Saint · Aug 7, 2021

https://www.youtube.com/watch?v=RfJceoji_Sg

Solve M.E. President & CEO Oved Amitay shares his thoughts on the significance of Severe ME Day.

mango · Aug 7, 2021

(I posted this link in the MEAction thread yesterday, too.)

MEAction's Severe ME Artists Project video (40 minutes) features some of the art submitted to them by 180 people with severe ME.

MEAction email said:

This project was created with an idea to allow those with severe ME to share their artwork with the larger community and provide an opportunity to be SEEN!
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https://www.youtube.com/watch?v=DEee7B_r4ls

ME/CFS Skeptic · Aug 14, 2021

Patients in Belgium and the Netherlands created this artwork for severe ME day
https://twitter.com/user/status/1426450411939053573

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Severe M.E Day - 8th of August 2021

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Severe M.E Day - 8th of August 2021

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