Severe ME/CFS: preventing the physical consequences of prolonged immobility

I'm interested to know what people with severe (and very severe) ME/CFS and their carers have found useful with respect to preventing negative physical consequences of prolonged immobility.

Some of the negative physical consequences I am thinking of, other than deconditioning/muscle wasting, are muscle contractures, bedsores and deep vein thrombosis. I'm also interested in any evidence that these problems are or are not significant issues in severe ME/CFS.

How and from whom did you get information on this topic? Has anyone found having someone come into your home to provide ongoing care for this useful?

 

@PhysiosforME might be able to help.