Part of the 'Unrest' campaign. For US folks, a call to the NIH to fund ME/CFS research equally and fairly: https://www.unrest.film/nih-petition For everyone, 'We call on every government in the world to formally recognize ME and sufficiently fund research at the levels needed to treat and, ultimately, find a cure.' https://www.unrest.film/global-petition Pile on, folks! Both currently about 1200 signatures.
Done. And will share, but could anyone please tell me if this is a brand new petition or has it been going on for a while? I don't recall having heard about it before..
It's a new one on me, which is why I posted it. And it has quite low numbers for a thing pushed out by the Unrest team, which suggests it hasn't been going long. ...just had a quick look on meaction.net and they seem to be the same ones as on there (I think they're linked because they're showing the same totals). They're both about a month old.
From the petition: This is far too low isn't it? If there are 1 million sufferers in the US that's only $20 each per year.
Good point. And that sentence appears in the Global petition in a context that suggests that it applies to the worldwide population. In which case it is of the order of $1 of annual medical costs and lost productivity per person with ME. ETA: Have signed
I wonder if that should be 'billion'? Worth contacting #MEA with these good points? (Sorry I am unable.)
I've sent a message to the Unrest team about the estimated annual medical costs and lost productivity, using the Contact facility on the website. I don't think the MEA is the right organisation to contact.
Good idea to contact the Unrest team! (I meant #MEAction rather than the ME Association, but either way, the Unrest team is the better choice. )
I think these petitions have been forgotten(?) https://www.unrest.film/nih-petition/ https://www.unrest.film/global-petition I signed both. The numbers are very low (both around the 2,000 mark); I'm surprised with all the coverage of UNREST that they (the petitions) have not been shared more (?) eta: someone used this link on twitter but its only for the first petition https://t.co/RCPYhzreOb
This URL allows you to choose between the two - https://www.unrest.film/time-for-unrest/#advocate, a short version of that is http://bit.ly/2APMVjh, in case it's of use to anyone.
