Sjogren's Disease

[TigerLilea]

I'm wondering if anyone in this group has had a diagnosis of Sjorgren's Disease since being diagnosed with ME/CFS? I was diagnosed with ME 35 years ago and with Sjorgren's eight years ago. My fatigue at the moment is the worst it has ever been and I'm having neurological symptoms. I recently had blood work for Vitamin B12 deficiency and as I have Sjorgren's, from what I'm reading, my results are considered borderline deficiency. I'm hoping to be able to get in to see a Rheumatologist in the next few months for further testing. Up until this point I've not had any symptoms relating to the Sjorgren's so I would be interested in hearing other people's experiences living with both ME and Sjorgren's.

 

[Evergreen]

So sorry you're feeling worse. Really hope the rheumatologist will be helpful.

There are a couple of people on this thread with a diagnosis of Sjögren's. @T&O was one. Oh wait, that thread was started by you too! So you probably know that already. Though you started it in 2019 and it got picked up again in 2025, so maybe you missed the later instalment?

Just be aware that there are some incorrect statements on the thread, so keep reading to understand more.