Open Stanford Center for Genomics and Personalized Medicine needs healthy controls for study ending soon

[MeSci]

Stanford Center for Genomics and Personalized Medicine needs healthy controls for study ending soon
----------------------------------------------------------
Less than one week left to find eight healthy female controls to complete the study led by Fereshteh Jahanbani

Stanford Center for Genomics and Personalized Medicine needs 8 more female healthy controls ASAP in order to finish a study that has less than one week left.

Healthy controls in the multi-omics study must women between 20-45 who don't have connective tissue disorders, obesity, diabetes, cancer history, kidney, liver, gallbladder, neurological and GI disorders, as well as CFS, Lyme or any autoimmune illness (as minor as psoriasis and severe sensual allergy). Many of our CFS patients have some of those conditions, and healthy controls without those overlapping conditions are needed for a better study plan. Participants will receive a small donation of a $25 amazon gift card and 'appreciation from the bottom of our heart....for advancing healthcare for 17 million sick people worldwide.'

If you would like to participate, email Fereshteh Jahanbani at

fjahania@stanford.edu

 

[wigglethemouse]

Update 10th January 2019
Fereshteh Jahanbani still needs 4 HEALTHY boys aged between 14-18, LOCAL to SF Bay Area

Facebook post from Nov 19th 2018 has full requirements

My dear CFS community, we are done with heathy female recruitment now. However, for our very young patients we need to recruit 10 healthy adolescents (5 boys and 5 girls between 8-18) to participate in our "CFS/EDS/PANS/Lyme" study. We offer a $50 amazon gift card to volunteers.

It would be great if those of you who have friends in the "Bay Area" with children could reach out to them and invite their children to the study with such a great cause.

Please reach out to those who do live "only and only" in the Bay Area, since we need to collect samples in our center in Palo Alto. We have two more weeks to go and this is the last cohort for this big study (1000 samples).

For healthy participants, we appreciate the support of adolescents who don't have connective tissue disorders, obesity, diabetes, cancer history, kidney, liver, gallbladder, neurological and GI disorders, as well as CFS, Lyme or any autoimmune illness (as minor as psoriasis or severe sensual allergy) and anxiety or depression.

We collect samples at 3165 porter Dr. Palo Alto at 10:30 am during week days. We need to ask all our participants to eat their breakfast at 8-8:15 am, and then avoid food and coffee for two hours till blood is collected. These two hours is really important for the study. Small volume of water is totally fine.

If you would like to participate, email Fereshteh Jahanbani at fjahania@stanford.edu

 

[wigglethemouse]

Fereshteh from Stanford Genome Technology group also hosts a closed Multi-Ohmics group on Facebook (need to request to join) where she is hosting two polls related to the multi-ohmics study
Group : https://www.facebook.com/groups/421053998316485/?ref=group_header

1. If you are an ME/CFS patient what is your blood-type


2. For those that have taken Sam-E what has been the effect on you

 

[Andy]

Unfortunately @wigglethemouse , it looks like privacy settings don't allow those Facebook posts to be seen by people who aren't friends of the person or members of the group.

 

[wigglethemouse]

Unfortunately @wigglethemouse , it looks like privacy settings don't allow those Facebook posts to be seen by people who aren't friends of the person or members of the group.

Shoot. I cannot see them as I have an ad-blocker too, that I couldn't figure out how to turn off.

Folks on Facebook can join the group by putting in a request at https://www.facebook.com/groups/421053998316485/?ref=group_header
I hope people can follow that link if they want to participate in the polls.

 

[wigglethemouse]

Fereshteh Jahanbani from the Stanford Genome Technology Center wrote a piece for OMF's #MayMomentum Story: The Journey of an ME/CFS Researcher


Link to Story : https://www.omf.ngo/2019/05/22/fere...itter&utm_medium=organic&utm_campaign=maymo19

Short description of her study contained in the write-up

How I wish he was alive today and could see that now we have collected 1000 samples with the support of many caring, amazing patients like him. He, his sister, many other patients, and many doctors and researchers helped me throughout this seven-year journey to collect an unprecedented sample size, and to begin studying the genetic and environmental causes for ME/CFS, chronic Lyme, EDS, and PANS/PANDAS, and the potential connections between these overlapping conditions. I will always remember him and his bravery. His hope will be my hope, and drive me every day to go beyond every hurdle and make the impossible possible! There are children as young as five, and grandfathers and mothers, who want to live their lives without worrying about crashing once again! This is a cause worth fighting for, and a job worth doing.

 

[Hutan]

Fereshteh Jahanbani from the Stanford Genome Technology Center wrote a piece for OMF's #MayMomentum Story:

It's beautifully written.