Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

Saw the FB-link with their statement regarding B12 in another thread. Strange that they won’t link to the cancer risk reports they refer to when people ask for it in the comments… Do you know what type and what dosage B12 they used? @mango

 

I have no personal experience, but based on the info people share on social media it's mecobalamin (methylcobalamin). Dosage is rarely mentioned and varies from person to person, but usually seems to be 10 mg (2 ml), injected 1-2 times a week. Many of them supplement folacin (folic acid) too, pills.

Many report that they are experiencing significant symptom relief (less brain fog and fatigue, shorter and milder PEM, better sleep etc), the kind that makes a big and real difference in their everyday life. Some have been using b12 for 10+ years, without it losing its effectiveness.

It's really strange that Bragée is withholding that info, right? A few days ago I had a look at many of the b12 related articles that have been added to PubMed in the last 12 months, but (looking at abstracts only) I wasn't able to find anything that came to significantly different conclusions than earlier studies/reviews.

The withholding of info is a bit of a pattern actually. It's not the first time Bragée refuses to share the evidence, data or references they are basing major decisions and statements on, which to me has always been a big red flag

ETA: Some/many have tried behepan too, but it doesn't seem to be effective.

 

Thank you very much, @mango ! Really appreciate it. Seems to be similar to the B12 dosage/frequency many have used before them. De Meirleir was one, but he used a Hydroxocobalamine from a local Belgian brand (Sterop).

 

Me-Center stänger i december 2023
https://www.bragee.se/me-center-stanger-i-december-2023

Google Translate, English ("Me-Center closes in December 2023")

 

In the post linked above, Bragée explains why they are closing ME-center early:

"compensation levels have been reduced as of February this year, in a way that makes it impossible to continue for the rest of the year."

However, according to recent correspondence ("allmän handling"/a public document) written by the political secretary of the Social Democratic Party in Region Stockholm, the compensation levels are unchanged:

Would you care to comment, @Bjorn Bragee?

 

ME-läkaren rasar mot slopad privatvård – slår mot de sjuka
https://sverigesradio.se/artikel/me-lakaren-rasar-mot-slopad-privatvard-slar-mot-de-sjuka

The region = the local government responsible for healthcare etc.

 

Marita är sängliggande 20 timmar per dag – nu ändras vården
https://sverigesradio.se/artikel/privat-me-vard-slopas-kroniskt-trotta-marita-oroad