Another great and informative section about ME from Swedish media. This time an interview with the famous crime fiction author Karin Alvtegen who is ill with ME. She talks about how the disease has turned her life up side down and describes her meetings with doctors as a Kafka-process. She says the lack of knowledge is disastrous, and to face mistrust from doctors and constantly having to explain and defend herself has been destructive. She says what is happening is a big scandal which HAS to end. From Stora Sköndal (a foundation with a ward for ME-patients outside Stockholm - very knowledgable and updated regarding ME) came dr. Anna Lindquist. She said it is very sad that there are still some doctors who don't believe in ME, when the proofs are so many. The most serious consequence is that the patients won't receive correct advice and that can make them worse. To exercise, push one self, is an advice that can come both from doctors, but also from patients themselves. This is wrong and can lead to a deterioration. Every time they get such a deterioration, they can lose more of their basic function, she warns. Language: Swedish Duration: 11 min P1-morgon: Karin Alvtegens trötthet går aldrig över
I'm really pleased to hear that. I'm so used to discussions of the UK media that I assumed that opening line was sarcasm. (Things have improved even in the UK over the last year though).