The Born Free Protocol

The host of the program is vehemently opposed to equating ME/CFS with LC.
The host spends much of his time on X dismissing anything ME related, shitting on advocates and charities, and winding up ME/CFS patients. He genuinely believes LC has nothing to do with ME/CFS and that ME folks are 'grifters' who have 'hijacked' LC. Others here will know him as 'Dave the LC Barbarian'. He seems to have recently deleted all this tweets and revamped his profile.
 
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Joshua Leisk on nitter Dec. 21 retweeting himself from 31 Jul 2024.

There are no secrets around my credentials or education, nor are there apologies.

Despite my lack of formal training in this field, my work has the respect of leading professors, doctors and patients now in longterm remission.

I’ve also been an invite-only member and speaker at Stanford / OMF working group since 2021.

He's mentioning OMF. OMF needs to make repeated public statements until it's common knowledge that Leisk's BF Protocol has nothing to do with them, that they didn't invite him to speak and that he isn't part of an OMF working group.

Your further attempts to smear me as an “anti-vaxer” won’t win any awards here either - I’ve worked with a significant number of people suffering from vaccine injuries after the last few years, also including both of my brothers and one of their wives. The literature is increasingly unfavourable around the rate of side effects and injuries.

I'm frustrated and angry by all this especially right before the holidays. And who will speak out for us besides @Jonathan Edwards? This seems like another situation where very sick people have to keep doing the heavy lifting. Will you get involved in this @dave30th? We need a lot of help in the US.
 

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I had all these panels of tests done over 25yrs ago and had a consult with a biochemist regarding my results. He owned a compounding pharmacy and tailored a 'custom formula' based on my results. I was deficient in most vitamins, proteins, fats, high oxidative stress et, but only omega-3 fish oils and magnesium/taurine injections improved my energy levels. It was pretty instant too.

His "hypothetical disease model" has been tried and done over and over again since the late 90s, and yes there are some hit and misses if you want to waste a lot of money on hope in a bottle.

"Some key mechanisms -
1) PEM explained primarily as impaired glycogen storage -> frequent glycogen depletion, downstream of multiple mechanisms, some key influences being sympathetic overdrive, low intracellular mineral status and histamine.
2) Baseline worsening created by pushing through PEM is caused by lactic acid metabolism -> acidaemia / acidosis -> enhanced renal excretion of zinc and electrolytes + inflammatory signalling cascade that inhibits absorption of dietary minerals.
3) Gut fermentation syndrome -> chronic acetaldehyde -> wide cascade of impairments, endogenous opioid synthesis and dysregulated cAMP-PKA.
4) Dysautonomia and extracellular ATP alarm signalling vs low dampening signal (inosine)... and quite a range of other impairments explained in the cascade".

 
Not to mention that Whitney has been slowly improving for years. The first improvement was attributed to Ativan and/or Abilify if I recall correctly.

Both. I think he first took Ativan, after which he improved, and then Abilify, which seemed to help more. But I think some of the effects wore off eventually.
My take on the BF protocol, with the amount of supplements and drugs you pump into your system its possible you hit one that improves your symptoms. Which is what Whitney did.

This seems possible, given the numbers of different compounds involved. Of course, they could also end up making people worse.
 
Agree. Proliferation of such nonsense is a sad and preventable outcome of society’s failure to invest in ME and find actual explanations and treatments.

I feel bad for the people who will try this out of desperation to feel better and follow his uninformed, costly, and harmful advice.
Haa anyone any ball park figure for rhe costs?
Programme, advice, products please?
Just interested as against Lightening, etc etc?
Just being nosy actually.
 
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