The disappearance of ME/CFS

Mij said:
My new GP wanted me to come in to assess my walking. I've had ME/CFS for 34 years, and she's not going to collect any data by watching me walk down the hallway. sheesh.
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I observe a critical state in many systems needing radical reform yesterday. Some breakthroughs broke through ugh trugh some programmed rearguard actions, so maybe your new GP is conducive, but:

Is it necessary to have a walking assessment?

If not, then is there any problem if one says: no thankyou?

Or if one asks: why?

If one is not in danger of falling. If one did not report stumbling legs, or shaky vision. If one is already assessed and diagnosed with a condition limiting mobility.

If not suspected of geriatric or other incompetence, and not currently asking for a mobility aid, domestic or nursing help, an income top-up, or a medical exemption.

And If no authority, professional or relative wants what re-assessed.

And there is nothing you don't know about on offer

Frankly, is this a mobility assessment to review the diagnosis, maybe suspected of being out-dated? Super-superseded? With precedence?

If so a review is not necessary, because the symptoms remain, and remain consistent with the current diagnostic criteria, too.
 
Mij said:
@bicentennial

I wrote about the issue I have with my new GP in more detail on another thread. She is very young, early 30s, she replaced my GP of over 35 years. She has only met me three times, the last time was 2yrs ago so she doesn't know much about me. I have a CFS diagnosis, I saw it on the computer screen but I'm not sure she's aware of that or even knows much about it. I never discussed it much with my retired GP, only when she asked how my 'fatigue' was doing. She understood that I was disabled though.

To make a long story short, I need to get my disability tax credit renewed every 4yrs, and when I spoke to the receptionist to get the process started, she went to inform the doctor. The doctor asked if I had "mental health issues". I explained to the receptionist, no, that's not my problem and that I have a physical and cognitive energy deficit- a recognized chronic illness since 1992. My GP still wanted me to come in to assess my walking.

I decided to upload information about ME/CFS to their secure portal to provide more info, so my GP agreed to a phone appointment. I hope she reads what I sent in, otherwise she won't understand the nature of my disability.
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It sounds like she thinks disability means 'can't walk good'.
 
I had to be assessed by a psych before I could get my ME diagnosis from the Charite hospital in Berlin. The first thing the psych did was insist that I walk down the corridor in front of her, presumably to assess my gait for some reason, she didn't explain. Once in her office she whacked me in the knees with a hammer. And I was there to prove that I didn't have mental health issues when she got to stalk people going down corridors and attack them with a hammer on a daily basis.
 
TiredSam said:
I had to be assessed by a psych before I could get my ME diagnosis from the Charite hospital in Berlin. The first thing the psych did was insist that I walk down the corridor in front of her, presumably to assess my gait for some reason, she didn't explain. Once in her office she whacked me in the knees with a hammer. And I was there to prove that I didn't have mental health issues when she got to stalk people going down corridors and attack them with a hammer on a daily basis.
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The dude who wanted to give me an FND diagnosis did the same to me. When I was bedridden!
 
Fabian Fritz a German ME advocate (translated)

I've unlocked a new level in ME/CFS and Long-COVID. A counseling center recommended I get a mental health diagnosis to avoid the stigma associated with Long-COVID. They said they advise all their clients in that area to do the same
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Original Post: (Only visible logged in) https://bsky.app/profile/ffhambu.bsky.social/post/3m7n5n3dj222w

Seems relevant to this thread.
 
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