The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale

Discussion in 'Subjective outcome measures (questionnaires)' started by Trish, Jul 12, 2024.

  1. Trish

    Trish Moderator Staff Member

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    https://www.elaros.com/

    ELAROS is a private company that works with the NHS to provide digital apps and websites, including patient apps where they can fill in PROMs, and access to these by clinicians.

    The initial aim, I think is for it to be used particularly for Long Covid clinics to track their patients in their rehab clinics.

    There is a questionnaire that seems to be at the heart of this called
    The Covid-19 Yorkshire Rehabilitation Scale

    I have had a look at it, and it seems fairly sensible and easy to fill in, with sections on symptoms, function and general health. Patients can fill it in on the app.

    Edit: See next post for research on the scale.
    The problems are the same as for all questionnaires - mainly when a set of quite sensible questions is turned into numerical data that can be very misleading, especially if used to justify rehabilitation as effective.
     
    Last edited: Jul 12, 2024
  2. Trish

    Trish Moderator Staff Member

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  3. Amw66

    Amw66 Senior Member (Voting Rights)

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  4. V.R.T.

    V.R.T. Senior Member (Voting Rights)

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    In a sane world the DWP would be legally prohibited from funding this sort of thing, especially after what happened with PACE.
     
  5. Amw66

    Amw66 Senior Member (Voting Rights)

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    Indeed
    Not content with accessing your bank account they want to know how " ill" you really are....
    its a bit kafkaesque
     

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