The growing crisis of long sepsis. It leaves sufferers with fatigue and brain fog - so when will the NHS start treating it properly?
By Lucy Elkins 11:56, 09 Jul 2024, updated 13:09, 09 Jul 2024
https://www.dailymail.co.uk/health/...anging-effects-NHS-tackle-growing-crisis.html
By Lucy Elkins 11:56, 09 Jul 2024, updated 13:09, 09 Jul 2024
https://www.dailymail.co.uk/health/...anging-effects-NHS-tackle-growing-crisis.html
Four days before her collapse, 'superfit' Katie, who had been teaching 13 fitness classes a week, visited her GP with 'shivering, bad muscle aches and just a general feeling of being unwell'. 'The GP told me to go home and drink Lucozade,' she says and, reassured, she did. It's advice she wishes she'd ignored.
Not only as she might then have avoided spending three months in hospital, but also because Katie, like thousands of others in the UK, still suffers life-changing after-effects — known as post-sepsis syndrome — seven years on.
The syndrome causes long-term effects that can be physical (from profound fatigue and joint or muscle pain, to hair and tooth loss); to cognitive (such as brain fog and memory problems); and psychological (with sleeping problems, flashbacks and nightmares not uncommon).
'Physically and mentally, I am a changed person,' she says. 'I used to be constantly on the go. I was the life of the party and would sign up for any charity triathlon going. 'Holidays involved skiing or coasteering. Now all that has stopped. All I can do is walk, at a slow, frustrating pace for everyone else.' She also lives with permanent fatigue and bad brain fog.
Indeed, a review published in the Infection and Drug Resistance journal last year highlighted 'many similarities' between the symptoms of post-sepsis syndrome and long Covid. It said: 'This raises the question whether these should be considered separate entities, or whether they represent the same condition.'
But whereas there are more than 100 clinics designated to treat long Covid patients in England, which are staffed by occupational health therapists, physiotherapists and specialist nurses, no such service exists for those with post-sepsis syndrome.
Dr Ron Daniels [intensive care consultant at University Hospitals Birmingham NHS Trust and CEO of The UK Sepsis Trust] says [...] 'We have seen a lot of resources devoted to people who survived Covid but developed long-term problems. But not for those who survive sepsis. It seems an injustice that those who survive one bug get the help they need, but those who survive another don't.'
Ideally, there would be similar clinics providing different services for those with post-sepsis syndrome, he adds.