The Neurological Alliance: [UK] General Election 2019, Our Neuro Pledge 2019

https://www.neural.org.uk/general-election-2019/

 

No ME charities are listed as members.

 

The Neurological Alliance is listed as one of Forward-ME's "linked organisations":

http://www.forward-me.org.uk/LinkedOrganisations.htm

 

All diseases are equal, some are more equal than others.

 

Well, this is where they explain the different membership options, all we have to do is convince our ME charity of choice to join up, https://www.neural.org.uk/membership-subscriptions/

 

I think most of our ME Charities aren't rich enough to do that? AfME maybe but I'm not keen on them being members anyway unless they really have changed their leopard spots.

Interesting to see their other list - the Corporate Supporters!

 

I don't think that's the same as being a Member of The Neurological Alliance.

 

Their membership rates don't seem particularly onerous to me, unless I'm missing something?

 

Of course not.

I'm just noting that Forward-ME has a link with the Neurological Alliance.

 

Their July 2019 Report:

https://www.neural.org.uk/resource_library/neuro-patience/

https://www.neural.org.uk/wp-content/uploads/2019/07/neuro-patience-2019-1.pdf

NEURO PATIENCE

Still waiting for improvements in treatment and care

The National Neurology Patient Experience Survey 2018/19: Policy report


included Chronic fatigue syndrome/ME.

(Pages: 21, 25, 43 and 50)

See also:

Technical Report

https://www.neural.org.uk/wp-content/uploads/2019/07/Neuro-Patience-Technical-Report.pdf

(Pages: 45, 47, 48, 49, 68 and 71)

 

Existing thread here:

https://www.s4me.info/threads/the-neurological-alliance-patient-experience-survey.7047/#post-182430

The Neurological Alliance: Patient experience survey