The NIH ME/cfs working group will videocast report to NINDS

https://twitter.com/user/status/1166872651228438534

 

I so hope that act on some of this, that it won't be left aside gathering dust

 

Link to agenda
https://www.ninds.nih.gov/About-NIN...DS-Advisory-Council-Agenda-September-4-5-2019

The meeting is actually 2 days long but the 5 September session is closed (not webcast).
Relevant session for ME is scheduled to begin at 1:20pm (ET)

AGENDA

September 4, 2019

OPEN SESSION


12:30 p.m.


I. Call to Order and Opening Remarks
Dr. Walter Koroshetz, Chairperson, Director, NINDS


12:35 p.m.


II. Report of the Director, Division of Extramural Activities, NINDS
Dr. Robert Finkelstein


A. Consideration of Minutes of May 23-24, Meeting


B. Confirmation of Dates for Future Council Meetings


Wed. & Thurs., February 5-6, 2020


Wed. & Thurs., May 27-28, 2020


Wed. & Thurs., September 9-10, 2020


Wed. & Thurs., February 10-11, 2021


Wed. & Thurs., May 26-27, 2021


Wed. & Thurs., September 8-9, 2021


C. Other Items


Expedited Review Process


Extramural Announcements


12:45 p.m.


III. Report of the Director, NINDS
Dr. Walter Koroshetz


1:05 p.m.


IV. Discussion of Director’s Report

1:20 p.m.


V. ME/CFS Working Group Report to Council
Dr. Andrew Breeden, Health Program Specialist, NINDS
Dr. Steven Roberds, Chief Scientific Officer, Tuberous Sclerosis Alliance

2:05 p.m.


VI. 2019 ADRD Summit Report
Dr. Rod Corriveau, Program Director, NINDS
Dr. Julie Schneider, The Deborah R. And Edgar D. Jannotta Presidential Professor of Pathology and Neurological Sciences,
Associate Director, Rush Alzheimer's Disease Center, Rush University Medical Center


2:45 p.m.


BREAK


3:00 p.m.


VII. Update from the Scientific Director of Intramural Research
Dr. Lorna Role, Scientific Director, NINDS





4:00 p.m.


VIII. NINDS Early Stage Investigator Analysis
Dr. William Daley, Health Program Specialist, NINDS


4:30 p.m.


IX. Initiatives Requiring Concept Clearance


6:00 p.m. **


ADJOURNMENT




September 5, 2019

8:30 a.m.


CLOSED SESSION


This portion of the meeting is being closed to the public in accordance with the provisions set forth in sections 552b(c)(4) and 552b(c)(6), Title 5, U.S. Code and Section 10(d) of the Federal Advisory Committee Act, as amended (5 U.S.C. Appendix 2).


X. Review of Conflict of Interest, Confidentiality, and Council Procedures
Council Consideration of Pending Applications
Dr. Robert Finkelstein, Executive Secretary, NANDS Council


This portion of the meeting is being closed to the public in accordance with the provisions set forth in sections 552b(c)(6), Title 5, U.S. Code and Section 10(d) of the Federal Advisory Committee Act, as amended (5 U.S.C. Appendix 2).


XI. Review of the Division of Intramural Research Board of Scientific Counselors' Reports
Dr. Walter Koroshetz


1:00 p.m. **


ADJOURNMENT
** This time is tentative

 

Can you view this online i.e. after the date? Or are there minutes?

 

@FMMM1 Yes you can view this.
https://videocast.nih.gov/summary.asp?Live=33390&bhcp=1 - webcast link for the entire day. (I don't know exactly where the ME report begins in the webcast but am guessing it's at least 1/2 way through.)
Additional thread on report (and webcast) https://www.s4me.info/threads/repor...me-cfs-research-now-online.11122/#post-199337

 

Thank you very much.