The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

[MrMagoo]

Is she aware of how many pwME that shoved antibiotics down their throats for years with zero results?

Apparently not.

 

[Yann04]

Being on a long term antibiotic prescription coincided with my ME onset. I sometimes wonder if there was any causation involved.

 

[oldtimer]

I was prescribed 6 months of azithromycin because I had a high mycoplasma load somewhere or other. I don't recall how it was tested for. It was 30 years ago when I knew nothing and asked nothing, and I trusted the integrative medicine doctor who actually believed me and did his best to help my 'mild' ME/CFS.
In the end the bacteria were reduced to a level that apparently could not be a problem, and that was the end of it.
There were no side effects and no after effects. I felt no different in any way whatsoever.

 

[MrMagoo]

I hope these “antibiotics what can cure the ME” aren’t like all the other ME cures, which only work if you believe they cure you.

 

[Mij]

Has this been posted before re Tess Falor "ME intrepid entrepreneur'?

In early 2009, she took a prevpac of two antibiotics (Amoxicillin and Clarithromycin) and a proton pump inhibitor (Lansoprazole) to treat H. pylori. Two days later, something incredible happened. She reported:

“I woke up and felt like I wasn’t in my body. It was disorienting, because my chronic pain had vanished. I thought I’d died because my body felt so light, like I was floating. My brain started working again; colors were brighter, food smelt better and I had this profound sense of gratitude for being alive.”

I was treated for the same infection and woke up after treatment feeling better b/c my gut wasn't causing me anymore distress. I had an actual positive h pylori infection, so yeah the treatment eradicated it.

It seems that she is hanging on to n=1 and n=2 experiences and flying with it.

 

[ryanc97]

sorry to raise old threads but I am rage reading all the Renegade Research/Dr.T posts here right now.

I am changing my post to be less offensive. Bottom line, I believe these guys position themselves as nonprofit but aim to pocket money for themselves.

What they are doing is harmful because they are getting a lot of publicity and donations which could be going elsewhere. So how are we going to stop them?

There’s a lot of very predatory practices going on in their X.

If I recover, I am going to OSINT them so badly and write up a length X thread.