Andy
Retired committee member
"#ThereForME is a campaign founded by Karen and Emma, two carers for partners with very severe ME/Long Covid. #ThereForME is calling for an NHS that's there for people with ME and Long Covid."
https://linktr.ee/ThereForME (Provides many links, including to an executive summary of the "Building an NHS that’s there for Long Covid and ME" campaign, the full report, open letter and more.)
Why we need an NHS that’s #ThereForME
Each story of a patient with Long Covid or ME, like ours, is an individual tragedy. Taken together, they speak to a vast loss to the UK’s society and economy. The new Labour government will face a vast array of pressing challenges in the months and years ahead. But this is an issue the UK can’t afford to ignore with a low-growth economy and record numbers out of work due to long-term illness.
A recent study found that people with Long Covid are three times more likely to give up work. Not least because there is very little meaningful help available for debilitating symptoms including (often extreme) cognitive dysfunction and the exacerbation of symptoms following any kind of exertion.
As patients and carers, we need an NHS that’s #ThereForME and Long Covid. But, truth be told, so does the new government – especially if they are serious about getting the UK economy moving again.
https://thereforme.substack.com/p/welcome-to-thereforme
https://linktr.ee/ThereForME (Provides many links, including to an executive summary of the "Building an NHS that’s there for Long Covid and ME" campaign, the full report, open letter and more.)
Why we need an NHS that’s #ThereForME
Each story of a patient with Long Covid or ME, like ours, is an individual tragedy. Taken together, they speak to a vast loss to the UK’s society and economy. The new Labour government will face a vast array of pressing challenges in the months and years ahead. But this is an issue the UK can’t afford to ignore with a low-growth economy and record numbers out of work due to long-term illness.
A recent study found that people with Long Covid are three times more likely to give up work. Not least because there is very little meaningful help available for debilitating symptoms including (often extreme) cognitive dysfunction and the exacerbation of symptoms following any kind of exertion.
As patients and carers, we need an NHS that’s #ThereForME and Long Covid. But, truth be told, so does the new government – especially if they are serious about getting the UK economy moving again.
https://thereforme.substack.com/p/welcome-to-thereforme