"Time for Unrest": ME article by Nathalie Wright

Here's an excellent article published at independent.co.uk, plus on a number of other news sites:

"Time for Unrest: Why patients with ME are demanding justice
A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken seriously by doctors"

http://www.independent.co.uk/news/l...chronic-fatigue-illness-disease-a8133616.html

It's a long read, but well worthwhile. It contains information about Jen Brea and Jessica Taylor from "Unrest", and goes on to say:

"Such stories of extreme physical debility are not, however, the most shocking part of the documentary. What has prompted a global justice movement is the fact that many doctors still refuse to accept that ME exists at all."

The article describes the history of the illness and covers the scandals associated with the biopsychosocial model, the PACE trial, the reanalysis, conflicts of interest with the disability insurance industry, plus a summary of research developments, and activism activities.

 

That looks really good. I'm not going to be able to read it all now, but I'm really looking forward to doing so tomorrow. Thanks for posting.

 

It made me cry, it was so good at summarising the situation to date and reporting it in an easy to read article that those without ME will be able to get the picture in an informed way.

 

it will probably take me a few days to read it all .but from what ive read great article.Thank you @Nathalie Wright

 

Wow. The tide IS turning.

 

To explain so much of the ME saga so well, so clearly and succinctly ( ok I know it's long but it's still succinct!), it's brilliant. Thank you very much indeed Nathalie Wright and the Independent.

 

I just read the whole thing and wow, it is very good. An excellent informative and detailed article that says it like it is about both the disease itself and the political machinations involved in the years of denying/trivialising it, with plenty of links to references. My one concern though, is whether the article will be allowed to stand or if a 'quiet phone call' might result in its sudden disappearance, because it really exposes a lot of BS for all to see. HUGE thanks and kudos to the author and the Independent for such a brave piece. An absolute must-read.

 

@Nathalie Wright Very well written, one of the best articles on ME/CFS i can remember reading

I don't think the internet archive is under the jurisdiction of the NHS

 

I agree. Excellent article. I think destined to become one of the 'go to' articles when required to present a precised but accurate account of the politics of this disease and how it impacts people with the disease.

 

Good idea! (But I would like to see it stand online in its current position in a mainstream paper.)

 

Yup, its already immortalized, though the video is not, hopefully someone has a backup copy

 

Do you mean the trailer video that plays at the top of the page? It's also found on YouTube:

https://www.youtube.com/watch?v=JvK5s9BNLzA

 

It's the forum software trying to be super useful, which it normally is. To show the actual URL for media like YouTube, Twitter etc that will normally auto-embed, one work-around is to use the "Code" option from the "Insert..." drop-down menu

to give you this

Code:

https://youtu.be/JvK5s9BNLzA

 

Thanks for the advice! I've now edited the post to make it look more sensible.

 

Back on topic, I agree that it's a fantastic article. It could well be worth starting to think that things are changing in the mainstream media, possibly, maybe.

For any Facebook-ers who are thinking of sharing it, sharing from the S4ME post would be useful to us.


ETA: Thanks to @MsUnderstood for some of the text for the post, the creative part of my brain is running slow this morning.

 

https://jcoynester.wordpress.com/20...une-for-the-biopsychosocial-model-of-illness/
James Coyne's blog is featuring the article.

 

How didn't i realize its the trailer, can i blame cognitive dysfunction

 

From the end of James Coyne's article:

Please read the whole thing and give him the traffic at:

https://jcoynester.wordpress.com/20...une-for-the-biopsychosocial-model-of-illness/

 

Do we know if the Independent story is in the paper version?