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Towards an institute for patient-led research - Trish Greenhalgh, BMJ blog November 12, 2019

Discussion in 'Research methodology news and research' started by Sly Saint, Nov 13, 2019.

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  1. Caroline Struthers

    Caroline Struthers Senior Member (Voting Rights)

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    OK. Well I posted a comment in agreement the one that questioned whether lack of equipoise was only a problem with patients, and it didn't get through the approval stage (presumably because I mentioned PACE), so I posted another one saying I was keen to join the discussion, but having trouble! I expect that will not be posted either!
     
    Caroline Struthers, Nov 18, 2019
    #41
    Peter Trewhitt, rvallee and Andy like this.
  2. rvallee

    rvallee Senior Member (Voting Rights)

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    I'll give it another day and re-submit tomorrow. Still pending. Weird how one of the comments is timestamped as 3 days ago yet only appeared today.
     
    rvallee, Nov 18, 2019
    #42
    Lucibee, Peter Trewhitt and Caroline Struthers like this.
  3. Caroline Struthers

    Caroline Struthers Senior Member (Voting Rights)

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    Sure enough - it's not been posted. So much for free speech eh?!
     
    Caroline Struthers, Nov 19, 2019
    #43
    Joh, rvallee, NelliePledge and 1 other person like this.
  4. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    "patient involvement" that does not include dissenting voices is just a way to let researchers deflect criticism of insufficient patient involvement while continuing to do exactly what patients don't want.
     
    Hoopoe, Nov 19, 2019
    #44
    Joh, ScottTriGuy, Sean and 12 others like this.
  5. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    Well said.
     
    ME/CFS Skeptic, Nov 19, 2019
    #45
    Caroline Struthers and rvallee like this.
  6. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Sly Saint, Nov 20, 2019
    #46
    Sean, rvallee, JohnM and 1 other person like this.
  7. rvallee

    rvallee Senior Member (Voting Rights)

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    Re-submitted 3 days ago. Both still left at "pending". Oh, well.
     
    rvallee, Nov 22, 2019
    #47
    Esther12 likes this.
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