Trial By Error: A Conversation with Patient Advocate Adam “Beyonce Holes” Lowe

Adam Lowe, known in some incarnations as Beyonce Holes, is a longtime ME/CFS patient and advocate in Manchester, England, served as a lay member of the committee that produced the new clinical guidance published last October by the UK’s National Institute for Health and Care Excellence. (This conversation was a follow-up to one I previously posted about his experiences on the committee.)

We also discussed other recent developments. The first was the release in May of a report called Rethinking ME by the All-Party Parliamentary Group on ME. The same month, then-health minister Sajid Javid launched an effort to promote research into the illness, boost awareness, and improve services for patients.

https://www.virology.ws/2022/07/25/...ith-patient-advocate-adam-beyonce-holes-lowe/

 

Great to hear from Adam and to get his perspective as an advocate.

 

Adam (ABrokenBattery) on Twitter:

"Summary of conversation between @adambeyoncelowe and @DavidTuller1 about the new NICE guideline and the new government initiative organised by former Health Secretary Sajid Javid and carried out by the Department of Health and Social Care."

 

@adambeyoncelowe

on wikipedia

https://en.wikipedia.org/wiki/Adam_Lowe_(writer)

 

Good catch! It seems to have been updated recently. I must have an admirer!