Trial By Error: Crowdfunding, Week 2; and more Sharpe and Chalder

So...Lost in Space..."Warning, warning alien approaching."


Speaking of "lost in space", even if the usual medical authorities classify IBS as MUS, commercial treatments in the form of probiotics abound on the TV. As a long time IBS sufferer, I can attest that reputable brands of probiotics do help.

And, egad, how bizarre to coach IBS sufferers with explosive diarrhea to resist running to the bathroom. That's cruel. Apparently the CBT/GET brigade want to control people from top to bottom - pun intended.
 
dave30th said:
Well I have to say I'm taking somewhat of an international view here. And I prefer to put an optimistic spin on things when I can. In the UK, I would say things are still largely stuck at the establishment level, that's probably true. And I do get concerned in the UK that the IAPT/MUS movement could outweigh any advances on the ME front.

I'm going to post the link when I get sent it. I couldn't find it either but was sent a copy of the letter and know it was in fact officially exists in cyber-space somewhere.
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You need to add Functional Neurological Disorder (FND) to the long list of what to look out for. A lot of patients are being re-diagnosed with it. The mail Yesterday did a piece on a young girl with head injury that was diagnosed with it once and recovered with CBT. Unfortunately she had another blow to the head and suffer more problems.

As far as I'm aware FND is under dissociative neurological symptoms disorder in ICD-11


https://www.dailymail.co.uk/health/...ft-18-kayaking-world-champion-wheelchair.htmlupload_2019-4-16_8-43-32.png
 
Tilly said:
You need to add Functional Neurological Disorder (FND) to the long list of what to look out for. A lot of patients are being re-diagnosed with it. The mail Yesterday did a piece on a young girl with head injury that was diagnosed with it once and recovered with CBT. Unfortunately she had another blow to the head and suffer more problems.

As far as I'm aware FND is under dissociative neurological symptoms disorder in ICD-11


https://www.dailymail.co.uk/health/...ft-18-kayaking-world-champion-wheelchair.htmlView attachment 6885
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Ironically, the FND comparison of a computer with software that does not work actually DOES fit a number of physical conditions, including hypokalemic periodic paralysis and normakalemic periodic paralysis ...

The full version of this post has been copied, and subsequent posts discussing it have been moved, to this thread:
Periodic Paralysis, myotonia, channelopathy and ME
 
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Amw66 said:
The methodology underpinning PACE underpins so much behavioural research that little would hold up to scrutiny.
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That's why I don't understand why other researchers/scientists/other interested in scientific integrity
have let it go on for so long.

The most outspoken of those 'in the field' of psychology/psychoanalysis/psychiatry etc who criticise IAPT largely base their arguments on their own preferred 'flavour' of CBT, /psychoanalysis.
(eg Dr Mike Scott, or Oliver James).
That said, it's good that people like Brian Hughes and Carolyn Wiltshire are questioning the methodology used in psychotherapy research.

If mental health and 'physical' health are to be integrated and given equal footing (as is happening and what MS and SW etc want), then surely their research should also adhere to the same standards.
At the very least there should be some kind of objective outcomes as a prerequisite.

The difficulty, I guess, is highlighting the issues, not in a 'psych vs physical' context but in the interests of people with either mental health issues or 'physical' conditions getting the best and most appropriate treatment.

The way things are going, unless the fundamental flaws in behavioural research methodologies are corrected, the system is failing both.
 
My sister, who's in her late 40's, only 7 years younger than I, had never heard of it, didn't even know who robbie the robot was and that was in everything for ages.

It would appear to be a generational thing.
 
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