UC50/ESA50: How your disability affects you

[InitialConditions]

I was wondering if anyone would like to share their response to this question from a successful UC50 (or ESA50) application, or has a template for the response.

Failing that, are there any good resources for answering this question? Primarily, I am interested in what to include here, the level of detail, and the structure/tone of the response.

One other question: is it customary to list all conditions in the response to this question? I see the wording on the form is often about 'your condition', not 'your conditions'....

 

[Annamaria]

or has a template for the response.

Benefits & Work guides (about £20 pa subscription gives access to all guides and forum). Brilliant value. https://www.benefitsandwork.co.uk/

UK ME & Chronic Illness Benefits Advice Group on Facebook. Large library of useful documents, lots of threads you can follow and learn from, and you can ask any questions you have. Excellent, but depressing to read of the struggles of others.

 

[Simbindi]

Use the Benefits and Work guides, as others have said. They give you advice on every question and descriptor for both the UC50/ESA50 and for the PIP forms. They are written by lawyers specialising in the area of UK benefits. Worth much more than every penny!

Edit: They also offer advice and guidance on how to appeal and how to deal with a Tribunal, should you need to. Their guide books are written in Plain English and easy to follow.

 

[Simbindi]

I was wondering if anyone would like to share their response to this question from a successful UC50 (or ESA50) application, or has a template for the response.

Failing that, are there any good resources for answering this question? Primarily, I am interested in what to include here, the level of detail, and the structure/tone of the response.

One other question: is it customary to list all conditions in the response to this question? I see the wording on the form is often about 'your condition', not 'your conditions'....

You've asked for people to share their personal experiences in the public part of the forum. You may want to get this thread moved to the members only area.

 

[InitialConditions]

Benefits & Work guides (about £20 pa subscription gives access to all guides and forum). Brilliant value. https://www.benefitsandwork.co.uk/

UK ME & Chronic Illness Benefits Advice Group on Facebook. Large library of useful documents, lots of threads you can follow and learn from, and you can ask any questions you have. Excellent, but depressing to read of the struggles of others.

Thank you. I have been active on the FB group. It's a good resource.

 

[JemPD]

I cant remember my form... do you mean the first question where it asks what your conditions are & how they affect your life?

If so..
We just gave an honest explanation of all the ways in which my condition affected me - eg list of symptoms, what I had to give up & why - so I included all the things that I enjoyed doing that I can no longer do. Including examples. (I think if you illustrate that you had to give up all kinds of things that you loved doing as well as work, it shows you don't have 'convenient' symptoms.

And yes I included my diff conditions - but only ones that affect my ability to do the tasks covered in the form. So for example I have some gynaecological conditions but I had them long before ME & since they do not affect one's ability to work, I left them out.

Also, since you could give scores of examples of how it affects you/what it prevents you doing, & there's only so much room on the form, I focussed on the details & examples which actually cover the questions/tasks in the rest of the form - those which I believe I qualify for the most points on - so don't choose an example/detail of something that makes your life miserable but isn't covered by any of the activity questions on the form over one that does.
So of the 1000 things you've had to give up/can no longer do, include the ones that involve both standing, walking, sitting, starting & finishing tasks, communicating etc etc etc, rather than one which covers something not in the form.
It should be a short, honest, 'this is what getting ME did to my life & why life with ME is so shit' write up, but always with the actual questions they ask in the rest of the form held in mind - otherwise you could go on for 20 pages & still not say much that's relevant to the actual questions about walking etc.
It's an attempt to explain what the experience of having ME is like, plus the specific ways that it affects your day to day life.

ETA also be wary of anything that could be ambiguous or be misinterpreted, or incorrect assumptions made about it. Proof read it with a judgemental, sceptical/disbelieving person's attitude, & then modify/remove/explain.
EG if you are rarely well enough to go out but 'X' happens when you do.... include the full 'I am rarely able to go out but when I do X happens', instead of just saying 'when I go out 'x' happens' because they may choose to wrongly assume from the latter version that you go out every day.

I don't claim this is right, but it's how we approached it. We were successful but I wouldn't know whether this was why. Who the heck knows!

 

[JemPD]

Also i'd advise writing it up roughly & then complete the rest of the form before finalising & putting on the form, because in completing the other questions you may prompt yourself with things you wish you'd included.

 

[InitialConditions]

I cant remember my form... do you mean the first question where it asks what your conditions are & how they affect your life?

If so..
We just gave an honest explanation of all the ways in which my condition affected me - eg list of symptoms, what I had to give up & why - so I included all the things that I enjoyed doing that I can no longer do. Including examples. (I think if you illustrate that you had to give up all kinds of things that you loved doing as well as work, it shows you don't have 'convenient' symptoms.

And yes I included my diff conditions - but only ones that affect my ability to do the tasks covered in the form. So for example I have some gynaecological conditions but I had them long before ME & since they do not affect one's ability to work, I left them out.

Also, since you could give scores of examples of how it affects you/what it prevents you doing, & there's only so much room on the form, I focussed on the details & examples which actually cover the questions/tasks in the rest of the form - those which I believe I qualify for the most points on - so don't choose an example/detail of something that makes your life miserable but isn't covered by any of the activity questions on the form over one that does.
So of the 1000 things you've had to give up/can no longer do, include the ones that involve both standing, walking, sitting, starting & finishing tasks, communicating etc etc etc, rather than one which covers something not in the form.
It should be a short, honest, 'this is what getting ME did to my life & why life with ME is so shit' write up, but always with the actual questions they ask in the rest of the form held in mind - otherwise you could go on for 20 pages & still not say much that's relevant to the actual questions about walking etc.
It's an attempt to explain what the experience of having ME is like, plus the specific ways that it affects your day to day life.

ETA also be wary of anything that could be ambiguous or be misinterpreted, or incorrect assumptions made about it. Proof read it with a judgemental, sceptical/disbelieving person's attitude, & then modify/remove/explain.
EG if you are rarely well enough to go out but 'X' happens when you do.... include the full 'I am rarely able to go out but when I do X happens', instead of just saying 'when I go out 'x' happens' because they may choose to wrongly assume from the latter version that you go out every day.

I don't claim this is right, but it's how we approached it. We were successful but I wouldn't know whether this was why. Who the heck knows!

thanks for this info!