UK: “Stronger Together” – ME/CFS Alliance 20th Anniversary event, The Pavillion, Winchester Cathedral, 4th March 2026: 10.30-4.00

[Hutan]

We have moved a number of posts related to a thread about paralysis.

 

[Jonathan Edwards]

Did any members attend?

Apart from Ponting the names of speakers don't excite me that much. It would have been good to meet Rob Wüst, but I didn't get a ticket.

 

[bobbler]

They will pull this stunt next time. It doesn't matter what the title ultimately ends up on, its the title that most people see and read and in todays world that is the first few hours of the article going up. Its disappointing that the BBC still sees fit to minimise this disease.

The way we should be handling it then is taking a screen shot of the before and logging when it changed for each occasion . And here is a great place for that

Then Writing into whatever the name of the programme they have where you write in with issues and saying ‘why is this an ongoing issue’ and citing the dates to say eg it has been at least twenty times in a row of the same thing …. And as it is always changed could someone confirm that rather than ‘doing this dance’ whatever kept causing the issue has been addressed for next time

And seeing what justification or honesty comes back

But yes making it obvious that it’s starting to look to anyone like choice to not learn on that … so why ?