[UK] A proposal for an ME/CFS, Long Covid, and Post-Infectious Disease research platform

I think Kitty makes a really good point.

But equally we do need to find ways of supporting good researchers. And how we best do that remains a question to me.

Relying upon obstinate sods is not enough, it limits the pool of available talent because not everyone with a sharp and creative mind is that way inclined. We’ve had to do it because there has been no choice, that doesn’t mean we can’t have better options in the future.

And part of this we should not forget is how we can support patients being involved. Because up until now it’s been a lucky few of us to live in the right place or be well enough. That’s not good enough.

We need more opportunities for researchers and more opportunities for patients. How do we best support those aims? Maybe I’ll start a new thread with that question.