UK Autism NICE guidelines

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I'm not sure of the formal evidence, but it does seem to be recognised by the NHS that CBT needs to be adapted for autistic people. However, antidotally I know a number of autistic peers who have been left traumatised by it.

 

Thats interesting, hadn't heard that before. I can add an anecdote - I had CBT for anxiety (et al) and might possibly be autistic. I do feel sort of traumatised by a good chunk of it, felt gaslit and struggled to trust myself afterwards, and am more convinced now than ever of the bottom line beliefs they tried to change. It was also incredibly frustrating, illogical, and failing at it felt shameful at the time.

 

I've just skimmed the NICE guidelines on adult autism and they were updated in June of this year.

There is a section addressing this in them now (I don't remember that in the older version):

https://www.nice.org.uk/guidance/cg...interventions-for-coexisting-mental-disorders

 

What I don't think this guidance in the updated NICE autism guidelines recognises, is that advice given by CBT therapists is often illogical, contradictory and judgmental. Many of us have depended on our logic and cognitive abilities to navigate the social world and interactions, so any challenge to that is both likely to be wrong in content and has the potential to create severe trauma and PTSD in autistic people.

 

I've just noticed the NICE autism guideline for adults was update in June 2021. I am just skimming them and they seem more detailed than previously.

https://www.nice.org.uk/guidance/cg142/chapter/Recommendations

 

Interesting, thank you. Will take me a while to read them properly, but in the meantime I do wish somebody would offer me a health passport! I mask so well that nobody has a clue unless they're trained, and there are occasional moments where it might make a genuine difference.

 

We have to look after out own medical needs as we are very neglected. It is perfectly valid to make your own passport or have a card or a medic alert. My grandson wears dog tags which explain he is autistic with severe social anxiety.

If medical staff are caring they will be glad to know of any problems you may have and if they are snippy or sarcastic, well, it prepares you for how they will treat you about everything.

 

if you are talking about the autism health passport - you can fill that in by yourself at home (I did!).

https://www.autism.org.uk/advice-and-guidance/topics/physical-health/my-health-passport