UK clinic: Harley Therapy

[Sean]

Thanks for that, @Dx Revision Watch.

 

[ToneAl]

Turing got it wrong. It wasn't how smart and human-like machines could become. It was how dumb and machine-like humans could.

The name of the band devo got their name is quite interesting. The name the band devo after the term de-evolution. Instead of mankind evoling their brains to higher intelligence and wisdom mankind are evolivng backwardly into sheep.

 

[CRG]

The name of the band devo got their name is quite interesting. The name the band devo after the term de-evolution. Instead of mankind evoling their brains to higher intelligence and wisdom mankind are evolivng backwardly into sheep.

Are we not men ! ? !

 

[bobbler]

See posts:

https://www.s4me.info/threads/updat...-terminology-systems.3912/page-34#post-465301

https://www.s4me.info/threads/updat...-terminology-systems.3912/page-34#post-465312

https://www.s4me.info/threads/updat...-terminology-systems.3912/page-34#post-465351


for information on a recent request to add the term "Functional neurological disorder" to SNOMED CT.

(Note the term "Functional neurological disorder" is already included in SNOMED CT as a Synonym under parent: Psychologic conversion disorder (disorder) SCTID: 20734000. It was apparently added to the January 2021 release of the International Edition and incorporated by all the national editions.)




ICD-11 is already released and can be used by early adopters. NHS Digital has said it does not anticipate that NHS England will be ready to migrate from ICD-10 to ICD-11 until at least 2026.





SNOMED CT is now mandated for use across NHS England primary care and all secondary care settings. It has replaced the, now retired, Read Codes/CTV3 primary care terminology system.

Prior to July 2015, all editions of SNOMED CT had the following listings for CFS, ME and PVFS:

Chronic fatigue syndrome (with ME – Myalgic encephalomyelitis and several other related and historical terms listed under Synonyms) was assigned two parent disorder classes: Mental disorder, and Multisystem disorder.

Following representations in 2014-15, the Countess of Mar was advised that the relationship between the entry for 52702003 Chronic fatigue syndrome and the Mental disorder parent had been retired. In future editions, Chronic fatigue syndrome would be listed under the single parent, 281867008 Multisystem disorder.

In 2017, SNOMED CT terminology managers decided that the Multisystem disorder concept term was not sufficiently specific for the purposes of their system and the term was inactivated (retired) for the January 2018 release across the entire system.

There had been 90 Children terms under SCTID: 281867008 Multisystem disorder (disorder) and the retirement of this parent concept had implications for all of these 90 terms — not just for Chronic fatigue syndrome and its Synonym terms.

Many of these 90 Children terms were assigned under a more specific parent but a few, including Chronic fatigue syndrome, had no new parent assigned to them.

This presented an opportunity to request a more specific parent for Chronic fatigue syndrome rather than being listed only under Clinical finding > Disease (disorder).

In February 2018, a formal request and rationale for adding the parent: Disorder of nervous system was submitted*. This was accepted by the terminology team and Chronic fatigue syndrome was classified under parent: Disorder of nervous system (disorder) for the SNOMED CT July 2018 release.

*Disclosure: I was heavily involved in this submission on behalf of Forward-ME.

SNOMED terminology team later revised the parents to:

Clinical finding (finding)
Disease (disorder)
Chronic disease (disorder)
Disorder of body system (disorder)
Disorder of nervous system (disorder)
Chronic nervous system disorder (disorder)

Energy and stamina finding (finding)
Clinical finding (finding)
General problem AND/OR complaint (finding)
Fatigue (finding)


So for SNOMED CT, already in use within NHS England, there had been a change of parent in 2018 from Multisystem disorder to Disorder of nervous system.

Is ‘conversion disorder’ still an official diagnosis?
It’s on its way out as a diagnosis in the UK, where the main manual referred to is the ICD, put out by the World Health Organisation (WHO). The current version, the ICD-10, still refers to conversion order. But they are in the process of releasing the ICD-11, which is replacing the diagnosis with ‘dissociative neurological symptom disorder’.

In fact most British scientists and psychologists are already using the newer terminology coming out of America. Their manual, the Diagnostic and Statistical Manual of Mental Disorders (DSM), has renamed conversion disorder “‘functional neurological symptom disorder’. Or just ‘functional neurological disorder’ (FND) for short.

Sadly I think as long as there is money to be made from it that's why it will exist. And when not it is used as a concept for power in general terms.

And in some that is where their sales-triangle is pitched, with the ill/to be 'helped' person just a puppet in the middle.

The fuzzier some want to make it the more cynical and decided by 'chooser' and demographic it seems.

Maybe we should add in some more 'layman's terms' used to infer this sort of thing to show how maybe its origins weren't necessarily from symptoms in the individual being labelled but those doing the labelling and societal issues more generally

And how if any 'real' tiny % of a % do exist of something that is real along these lines, it doesn't justify pretending that makes the rest of it 'accurate' or 'done to help'.

Noone would want a cancer diagnosis if it weren't accurate. Or to be forced to live as a diabetic when they aren't. Or vice-versa to pretend if they acted less diabetic they'd become less diabetic.

One has to question why any industry ahem scientific medicine that wanted to help would want to make understanding of a condition fuzzier instead of more forensic in order to really test whether 'help' is indeed that. Rather than thinly veiled something else.